NDLI: The potential of a population register for addressing health inequities: an observational study using data linkage to improve breast cancer screening enrolment and participation in Indigenous Māori women in Aotearoa New Zealand

Content Provider	Springer Nature : BioMed Central
Author	Aye, Phyu Sin Bartholomew, Karen Walsh, Michael Pritchard, Kathy Pierce, Maree Richards, Jenny Chambers, Erin Haggie, Aroha Solomon, Jesse Lord, Gabrielle Soloai, Tiffany Symons, Lorraine Tipene, Roimata Jansen, Rawiri McKree
Abstract	Background Breast cancer screening in Aotearoa New Zealand (NZ) still has persistent inequitable coverage by ethnicity, especially for Indigenous Māori women. This project aimed to undertake systematic data linkage to identify and invite eligible Māori women to participate in breast screening. Methods This is a cross-sectional observational study conducted in Northern New Zealand between 1/01/2020 and 30/06/2021. The BreastScreen Aotearoa (BSA) register was linked with the primary care data to identify and invite eligible Māori women (aged 45–69 years) to breast screening, who were not currently enrolled in BSA, and who were enrolled in BSA but had not been screened or overdue for breast screening. Invitations were sent through invitation letters, text messages and phone calls. Enrolment to BSA and screening participation at 15 and 18 months from the project’s start date were reported. Results Through the data linkage, 2295 women who were not enrolled in BSA were identified eligible for breast screening. Approximately half (n = 1086) of the women were contactable within 5 contact attempts. Of these contactable, 345 (32%) women were enrolled in BSA, 421 (39%) were screened at 15 months, increasing to 441 (41%) at 18 months from the project start. Among women who were previously enrolled but never screened or overdue for screening, 1470 women were eligible. Their contact details were updated through the data linkage, which facilitated BSA to contact them successfully for breast screening. Consequently, 305 (21%) of these eligible were screened at 15 months, and increased to 332 (23%) at 18 months. Conclusions The data linkage approach has evidenced the benefit of a population register to facilitate equitable access to breast screening services. Further work is needed on choices of combined approaches for optimising screening uptake equitably.
Related Links	https://bmchealthservres.biomedcentral.com/counter/pdf/10.1186/s12913-024-12186-3.pdf
Ending Page	10
Page Count	10
Starting Page	1
File Format	HTM / HTML
ISSN	14726963
DOI	10.1186/s12913-024-12186-3
Journal	BMC Health Services Research
Issue Number	1
Volume Number	25
Language	English
Publisher	BioMed Central
Publisher Date	2025-01-13
Access Restriction	Open
Subject Keyword	Public Health Health Administration Health Informatics Nursing Research Breast cancer Screening Data linkage Māori Population register
Content Type	Text
Resource Type	Article
Subject	Health Policy

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

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