NDLI: Patient experiences and needs in cancer care– results from a nationwide cross-sectional study in Germany

Content Provider	Springer Nature : BioMed Central
Author	Ziegler, Elâ Klein, Jens Kofahl, Christopher
Abstract	Background Patient-centredness has become a central quality indicator for oncology care. Elements include shared decision-making, patient navigation and integration of psychosocial care, which impact patient-reported and clinical outcomes. Despite efforts to promote patient-centred care in Germany in recent decades, implementation remains fragmented. Further, research on patient experiences with cancer care and its determinants is limited. Therefore, this study examines which patient- and facility-specific factors are associated with patient-centred quality care delivery. Methods A cross-sectional study was conducted among 1,121 cancer patients in acute treatment, rehabilitation, and aftercare for different cancer entities across Germany. A participatory developed questionnaire was used. Outcome measures were the quality of physician-patient interaction and provision of psychosocial care during acute care. Predictors comprised patient-specific characteristics and treatment facility-specific factors. Multiple linear regression and multivariate binary logistic regression analyses were performed. In addition, a content analysis of open-ended comments on the patients’ overall cancer care needs was applied. Results Multiple linear regression analysis showed recent diagnosis (β=−0.12, p = < 0.001), being male (β=−0.11, p = 0.003), and having a preference for passive decision-making (β=−0.10, p = 0.001) to be significantly associated with higher interaction quality, but not age, education and health insurance type. An overall low impact of patient characteristics on interaction quality was revealed (adj. R2 = 0.03). Binary logistic regression analysis demonstrated the availability of central contact persons (OR = 3.10, p < 0.001) followed by recent diagnosis (p < 0.001), having breast cancer (p < 0.001) and being female (OR = 1.68, p < 0.05) to significantly predict offering psycho-oncological counselling to patients in acute care facilities. The availability of peer support visiting services (OR = 7.17, p < 0.001) and central contact persons (OR = 1.87, p < 0.001) in the care facility, breast cancer diagnosis (p < 0.001) and a higher level of education (p < 0.05) significantly increased the odds of patients receiving information about peer support in the treatment facility. Despite relatively satisfactory quality of physician-patient interactions in cancer care (M = 3.5 (± 1.1)), many patients expressed that better patient-centred communication and coordinated, comprehensive cancer care are needed. Conclusion The findings reflect effective developments and improvements in cancer care and suggest that patients’ social characteristics are less decisive for delivering patient-centred quality care than systemic factors surrounding the care facilities. They can serve to inform oncology care in Germany.
Related Links	https://bmchealthservres.biomedcentral.com/counter/pdf/10.1186/s12913-024-10951-y.pdf
Ending Page	10
Page Count	10
Starting Page	1
File Format	HTM / HTML
ISSN	14726963
DOI	10.1186/s12913-024-10951-y
Journal	BMC Health Services Research
Issue Number	1
Volume Number	24
Language	English
Publisher	BioMed Central
Publisher Date	2024-05-02
Access Restriction	Open
Subject Keyword	Public Health Health Administration Health Informatics Nursing Research Cancer care Oncology Patient satisfaction Patients’ needs Patient experience Physician-patient interaction Patient-centred care Patient-reported outcomes
Content Type	Text
Resource Type	Article
Subject	Health Policy

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

Experiences of patients with cancer at health care facilities in Japan: results from a nationwide survey

Person-centred care in oncological home services: a scoping review of patients’ and caregivers’ experience and needs

Patients' satisfaction and opinions of their experiences during admission in a tertiary care hospital in Pakistan – a cross sectional study

Patients’ cancer care perceptions conceptualized through the Cancer Experience Measurement Framework

Older adult experience of care and staffing on hospital and community wards: a cross-sectional study

Determinants of patient-reported experience of cancer services responsiveness

Experiences and challenges to cross-sectoral care reported by patients with low back pain. A qualitative interview study

Educational inequalities in patient-centred care: patients' preferences and experiences

Inequalities in patients’ experiences with cancer care: the role of economic and health literacy determinants

Patient experiences and needs in cancer care– results from a nationwide cross-sectional study in Germany

Similar Documents

Experiences of patients with cancer at health care facilities in Japan: results from a nationwide survey

Person-centred care in oncological home services: a scoping review of patients’ and caregivers’ experience and needs

Patients' satisfaction and opinions of their experiences during admission in a tertiary care hospital in Pakistan – a cross sectional study

Patients’ cancer care perceptions conceptualized through the Cancer Experience Measurement Framework

Older adult experience of care and staffing on hospital and community wards: a cross-sectional study

Determinants of patient-reported experience of cancer services responsiveness

Experiences and challenges to cross-sectoral care reported by patients with low back pain. A qualitative interview study

Educational inequalities in patient-centred care: patients' preferences and experiences

Inequalities in patients’ experiences with cancer care: the role of economic and health literacy determinants

Patient experiences and needs in cancer care– results from a nationwide cross-sectional study in Germany