NDLI: Toxic ignorance and right-to-know in biomonitoring results communication: a survey of scientists and study participants

Content Provider	Springer Nature : BioMed Central
Author	Morello-Frosch, Rachel Brody, Julia Green Brown, Phil Altman, Rebecca Gasior Rudel, Ruthann A Pérez, Carla
Abstract	Background Exposure assessment has shifted from pollutant monitoring in air, soil, and water toward personal exposure measurements and biomonitoring. This trend along with the paucity of health effect data for many of the pollutants studied raise ethical and scientific challenges for reporting results to study participants. Methods We interviewed 26 individuals involved in biomonitoring studies, including academic scientists, scientists from environmental advocacy organizations, IRB officials, and study participants; observed meetings where stakeholders discussed these issues; and reviewed the relevant literature to assess emerging ethical, scientific, and policy debates about personal exposure assessment and biomonitoring, including public demand for information on the human health effects of chemical body burdens. Results We identify three frameworks for report-back in personal exposure studies: clinical ethics; community-based participatory research; and citizen science 'data judo.' The first approach emphasizes reporting results only when the health significance of exposures is known, while the latter two represent new communication strategies where study participants play a role in interpreting, disseminating, and leveraging results to promote community health. We identify five critical areas to consider in planning future biomonitoring studies. Conclusion Public deliberation about communication in personal exposure assessment research suggests that new forms of community-based research ethics and participatory scientific practice are emerging.
Related Links	https://ehjournal.biomedcentral.com/counter/pdf/10.1186/1476-069X-8-6.pdf
Ending Page	13
Page Count	13
Starting Page	1
File Format	HTM / HTML
DOI	10.1186/1476-069X-8-6
Journal	Environmental Health
Issue Number	1
Volume Number	8
Language	English
Publisher	BioMed Central
Publisher Date	2009-02-28
Access Restriction	Open
Subject Keyword	Occupational Medicine Industrial Medicine Public Health Environmental Health Blood Lead Level Clinical Ethic Brominate Flame Retardant Exposure Reduction Regulatory Benchmark Occupational Medicine/Industrial Medicine
Content Type	Text
Resource Type	Article
Subject	Health, Toxicology and Mutagenesis Public Health, Environmental and Occupational Health
Journal Impact Factor	5.4/2023
5-Year Journal Impact Factor	6.7/2023

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

Translating biomonitoring data into risk management and policy implementation options for a European Network on Human Biomonitoring

Thyroid hormone metabolism and environmental chemical exposure

How can scientists bring research to use: the HENVINET experience

Exposure to flame retardant chemicals on commercial airplanes

Intelligence gain and social cost savings attributable to environmental lead exposure reduction strategies since the year 2000 in Flanders, Belgium

Policy relevant Results from an Expert Elicitation on the Human Health Risks of Decabromodiphenyl ether (decaBDE) and Hexabromocyclododecane (HBCD)

Environmental health and justice and the right to research: institutional review board denials of community-based chemical biomonitoring of breast milk

Low-level environmental lead exposure in childhood and adult intellectual function: a follow-up study

Childhood lead exposure in France: benefit estimation and partial cost-benefit analysis of lead hazard control

Toxic ignorance and right-to-know in biomonitoring results communication: a survey of scientists and study participants

Similar Documents

Translating biomonitoring data into risk management and policy implementation options for a European Network on Human Biomonitoring

Thyroid hormone metabolism and environmental chemical exposure

How can scientists bring research to use: the HENVINET experience

Exposure to flame retardant chemicals on commercial airplanes

Intelligence gain and social cost savings attributable to environmental lead exposure reduction strategies since the year 2000 in Flanders, Belgium

Policy relevant Results from an Expert Elicitation on the Human Health Risks of Decabromodiphenyl ether (decaBDE) and Hexabromocyclododecane (HBCD)

Environmental health and justice and the right to research: institutional review board denials of community-based chemical biomonitoring of breast milk

Low-level environmental lead exposure in childhood and adult intellectual function: a follow-up study

Childhood lead exposure in France: benefit estimation and partial cost-benefit analysis of lead hazard control

Toxic ignorance and right-to-know in biomonitoring results communication: a survey of scientists and study participants