NDLI: Evaluating the effectiveness of different approaches to home support for people in later stage dementia: a protocol for an observational study.

Content Provider	World Health Organization (WHO)-Global Index Medicus
Author	Chester, Helen Clarkson, Paul Hughes, Jane Russell, Ian Beresford, Joan Davies, Linda Jolley, David Peconi, Julie Poland, Fiona Roberts, Chris Sutcliffe, Caroline Challis, David
Description	Country affiliation: United kingdom Author Affiliation: Chester H ( Personal Social Services Research Unit,Division of Population Health,Health Services Research and Primary Care,School of Health Sciences,Faculty of Biology,Medicine and Health,Manchester Academic Health Science Centre,University of Manchester,Manchester,UK.); Clarkson P ( Personal Social Services Research Unit,Division of Population Health,Health Services Research and Primary Care,School of Health Sciences,Faculty of Biology,Medicine and Health,Manchester Academic Health Science Centre,University of Manchester,Manchester,UK.); Hughes J ( Personal Social Services Research Unit,Division of Population Health,Health Services Research and Primary Care,School of Health Sciences,Faculty of Biology,Medicine and Health,Manchester Academic Health Science Centre,University of Manchester,Manchester,UK.); Russell I ( Swansea Trials Unit,School of Medicine,Swansea University,Swansea,UK.); Beresford J ( Personal Social Services Research Unit,Division of Population Health,Health Services Research and Primary Care,School of Health Sciences,Faculty of Biology,Medicine and Health,Manchester Academic Health Science Centre,University of Manchester,Manchester,UK.); Davies L ( Manchester Centre for Health Economics,Division of Population Health,Health Services Research and Primary Care,School of Health Sciences,Faculty of Biology,Medicine and Health,Manchester Academic Health Science Centre,University of Manchester,Manchester,UK.); Jolley D ( Personal Social Services Research Unit,Division of Population Health,Health Services Research and Primary Care,School of Health Sciences,Faculty of Biology,Medicine and Health,Manchester Academic Health Science Centre,University of Manchester,Manchester,UK.); Peconi J ( Swansea Trials Unit,School of Medicine,Swansea University,Swansea,UK.); Poland F ( School of Health Sciences,Faculty of Medicine and Health Sciences,University of East Anglia,Norwich,UK.); Roberts C ( Division of Population Health,Health Services Research and Primary Care,School of Health Sciences,Faculty of Biology,Medicine and Health,Manchester Academic Health Science Centre,University of Manchester,Manchester,UK.); Sutcliffe C ( Personal Social Services Research Unit,Division of Population Health,Health Services Research and Primary Care,School of Health Sciences,Faculty of Biology,Medicine and Health,Manchester Academic Health Science Centre,University of Manchester,Manchester,UK.); Challis D ( Personal Social Services Research Unit,Division of Population Health,Health Services Research and Primary Care,School of Health Sciences,Faculty of Biology,Medicine and Health,Manchester Academic Health Science Centre,University of Manchester,Manchester,UK.)
Abstract	BACKGROUND: Dementia is a major health problem with a growing number of people affected by the condition, both directly and indirectly through caring for someone with dementia. Many live at home but little is known about the range and intensity of the support they receive. Previous studies have mainly reported on discrete services within a single geographical area. This paper presents a protocol for study of different services across several sites in England. The aim is to explore the presence, effects, and cost-effectiveness of approaches to home support for people in later stage dementia and their carers. METHODS: This is a prospective observational study employing mixed methods. At least 300 participants (people with dementia and their carers) from geographical areas with demonstrably different ranges of services available for people with dementia will be selected. Within each area, participants will be recruited from a range of services. Participants will be interviewed on two occasions and data will be collected on their characteristics and circumstances, quality of life, carer health and burden, and informal and formal support for the person with dementia. The structured interviews will also collect qualitative data to explore the perceptions of older people and carers. CONCLUSIONS: This national study will explore the components of appropriate and effective home support for people with late stage dementia and their carers. It aims to inform commissioners and service providers across health and social care.
File Format	HTM / HTML
ISSN	10416102
Journal	International Psychogeriatrics
e-ISSN	1741203X
Language	English
Publisher	Cambridge University Press
Publisher Date	2017-03-07
Publisher Place	Great Britain (UK)
Access Restriction	Subscribed
Subject Keyword	Discipline Psychiatry Discipline Geriatrics
Content Type	Text
Resource Type	Article
Subject	Gerontology Clinical Psychology Geriatrics and Gerontology Psychiatry and Mental Health

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