NDLI: Regional dementia care networks in Germany: changes in caregiver burden at one-year follow-up and associated factors.

Content Provider	World Health Organization (WHO)-Global Index Medicus
Author	Laporte Uribe, Franziska Gräske, Johannes Grill, Susann Heinrich, Steffen Schäfer-Walkmann, Susanne Thyrian, Jochen René Holle, Bernhard
Description	Country affiliation: Germany Author Affiliation: Laporte Uribe F ( German Center for Neurodegenerative Diseases e. V. (DZNE) site Witten,Postfach 62 50,Stockumer Str. 12,58453 Witten,Germany.); Gräske J ( Health Care Research,University of Bremen,Department 11,Human and Health Sciences,Postfach 330440,28334 Bremen,Germany.); Grill S ( University of Bremen,Competence Center for Clinical Trials,Linzer Straße 4,28359 Bremen,Germany.); Heinrich S ( German Center for Neurodegenerative Diseases e. V. (DZNE) site Witten,Postfach 62 50,Stockumer Str. 12,58453 Witten,Germany.); Schäfer-Walkmann S ( Institute for Applied Social Sciences Stuttgart,Rotebühlstraße 131,70197 Stuttgart,Germany.); Thyrian JR ( German Center for Neurodegenerative Diseases e. V. (DZNE) site Greifswald,Ellernholzstraße 1-2,17487 Greifswald,Germany.); Holle B ( German Center for Neurodegenerative Diseases e. V. (DZNE) site Witten,Postfach 62 50,Stockumer Str. 12,58453 Witten,Germany.)
Abstract	BACKGROUND: Recently, regional dementia care networks (DCNs) have been established in Germany to provide timely support for persons with dementia (PwDs) and their families. There is a lack of research in this setting. This study was conducted to describe the burden experienced by informal caregivers over the course of one year when utilizing a DCN and the factors affecting potential changes in caregiver burden during that time. METHODS: The study was part of the DemNet-D project, a multi-center observational study of DCNs in Germany. Standardized questionnaires were administered during face-to-face interviews at baseline and at a one-year follow-up with PwDs and their informal caregivers who used a DCN. Based on qualitative data, four DCN governance types were identified and used in a multivariate analysis of burden categories. RESULTS: A total of 389 PwD-informal caregiver dyads completed the follow-up assessment. At follow-up, the dyads reported significantly lower scores for burden in relation to practical care tasks, conflicts of need, and role conflicts. This change was associated with the PwD-caregiver relationship, the caregiver's gender and health status, and the PwD's socio-economic status. The governance structure of the DCNs was associated with change in one of the four burden categories. CONCLUSIONS: Our data provide the first indications that different governance structures of DCNs seem to be similarly well suited to support network users and might contribute to reducing caregiver burden. However, further studies set in DCNs examining factors that mediate changes in burden are needed to draw strong conclusions regarding the effectiveness of DCNs. Gender differences and the PwD-caregiver relationship should be considered by DCN stakeholders when developing support structures.
File Format	HTM / HTML
ISSN	10416102
Journal	International Psychogeriatrics
e-ISSN	1741203X
Language	English
Publisher	Cambridge University Press
Publisher Date	2017-03-02
Publisher Place	Great Britain (UK)
Access Restriction	Subscribed
Subject Keyword	Discipline Psychiatry Discipline Geriatrics
Content Type	Text
Resource Type	Article
Subject	Gerontology Clinical Psychology Geriatrics and Gerontology Psychiatry and Mental Health

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