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| Content Provider | Springer Nature : BioMed Central |
|---|---|
| Author | Shaukat, Natasha Merchant, Asma Altaf Hussain Sahibjan, Fazila Abbasi, Ayesha Jarrar, Zeerak Ahmed, Tanveer Atiq, Huba Khan, Uzma Rahim Khan, Nadeem Ullah Mushtaq, Saima Rasul, Shahid Hyder, Adnan A. Razzak, Junaid Haider, Adil |
| Abstract | Objectives Trauma registries are essential tools for improving trauma care quality and efficiency, but many fail to capture long-term patient-reported outcome measures (PROMs). Focusing on these outcomes is crucial for understanding the extent of disability patients experience and identifying potential post-discharge interventions to optimize recovery. Studies reflecting the experience from low- and middle-income countries in this area are limited. Therefore, we aim to develop a digital trauma registry in Pakistan to prospectively capture patient-reported outcome measures at one, three, six, and twelve months post-injury. Methods We will develop and implement a digital trauma registry at two tertiary care facilities in Karachi, Pakistan: Aga Khan University Hospital and Jinnah Postgraduate Medical Center. The registry will include all admitted adult trauma patients (≥ 18 years). Data collection will be conducted digitally using tablets, with mortality, level of disability, functional status, and quality of life as primary outcomes. Follow-up data will be collected through telephone interviews with patients and caregivers. We will employ descriptive statistics to summarize participant’s socio-demographic and clinical characteristics. Additionally, we will perform survival analysis using Kaplan-Meier curves and Cox proportional hazard models and utilize mixed-effects linear regression to adjust for potential confounders for primary outcomes. Discussion The trauma registry will fill the current gap in knowledge regarding long-term outcomes among trauma patients in low- and middle-income countries (LMICs). This study will delineate future direction for capturing post-discharge data, enhancing our understanding of recovery, and informing the design of interventions aimed at improving long-term outcomes. |
| Related Links | https://archpublichealth.biomedcentral.com/counter/pdf/10.1186/s13690-024-01385-3.pdf |
| Ending Page | 7 |
| Page Count | 7 |
| Starting Page | 1 |
| File Format | HTM / HTML |
| ISSN | 20493258 |
| DOI | 10.1186/s13690-024-01385-3 |
| Journal | Archives of Public Health |
| Issue Number | 1 |
| Volume Number | 82 |
| Language | English |
| Publisher | BioMed Central |
| Publisher Date | 2024-10-23 |
| Access Restriction | Open |
| Subject Keyword | Public Health Medicine Health Policy Health Services Research Health Informatics Patient reported outcome measures Digital Trauma registries Disabilities Low- and middle- income countries Medicine/Public Health |
| Content Type | Text |
| Resource Type | Article |
| Subject | Public Health, Environmental and Occupational Health |
| Journal Impact Factor | 3.2/2023 |
| 5-Year Journal Impact Factor | 3.3/2023 |
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