NDLI: Unleashing the true potential of social networks: confirming infliximab medical trials through Facebook posts

Content Provider	Springer Nature Link
Author	Prandi, Catia Salomoni, Paola Marfia, Gustavo Roccetti, Marco
Copyright Year	2016
Abstract	Online medical information prosumerism is supported by search engines, web sites, forums and social networks, all tools which provide a timely browsing of the big data of medical information. Reliable medical ecosystems require an assessment of such data, to control its quality from both clinical and patient standpoints. In addition, independent of its scientific accuracy, the full gamut of human experiences and emotions which are shared online in connection to a disease may provide important insights to both communities. Such opportunity may prove of particular interest to chronic disease communities, as chronic patients are expected to devote most of their medical enquiries around the same health topics; nonetheless, the resources that are available online for chronic patients are far from being fully exploited, as well as the behaviors adopted by chronic patients while interacting with such information. This paper sheds light on how a growing community of chronic patients, Crohn’s disease patients, employ such tools. The contribution of this work is twofold, as it provides implications for both the computer and medical science communities. In fact, this work performs both an original in-depth and comprehensive analysis, as it concentrates on the online debate concerning the use of a specific drug, Infliximab, by Crohn’s disease patients, specifically: (1) utilizing data mining and statistical methodologies to quantitatively assess trends in user posts, and (2) resorting to ethnographic methods to further understand the problems and concerns of patients. Interestingly, the qualitative approach not only corroborates the quantitative one, but also provides novel perspectives for medical research, regarding how Infliximab is administered and perceived by patients.
Starting Page	1
Ending Page	13
Page Count	13
File Format	PDF
ISSN	21926662
Journal	Network Modeling Analysis in Health Informatics and Bioinformatics
Volume Number	5
Issue Number	1
e-ISSN	21926670
Language	English
Publisher	Springer Vienna
Publisher Date	2016-05-14
Publisher Place	Vienna
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Computational Biology/Bioinformatics Well-being Infliximab Health Social networks Health Informatics Chronic autoimmune diseases Bioinformatics Crohn’s disease Applications of Graph Theory and Complex Networks
Content Type	Text
Resource Type	Article
Subject	Urology

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

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