NDLI: Emerging consumers view of secondary uses of medical data

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Emerging consumers view of secondary uses of medical data

Content Provider	IEEE Xplore Digital Library
Author	Heath, J.
Copyright Year	2010
Description	Author affiliation: University of Wollongong (Heath, J.)
Abstract	Results of a pilot public opinion survey regarding privacy and secondary uses of medical data are presented. Data was gathered using a self administered household survey. The setting for the survey was regional New South Wales and Darwin, Australia. 482 surveys were distributed in randomly chosen residential blocks. The main outcome measures included respondent views regarding concern for personal privacy and support for secondary uses of medical data for utilitarian purposes. 165 surveys were returned giving a 34.2% response rate. Aspects of the Restricted Access Limited Control theory of privacy were explored via the survey. Results indicate the value of further research to give insight into operationalising RALC to support secondary uses of medical data for health research.
Starting Page	87
Ending Page	95
File Size	369893
Page Count	9
File Format	PDF
ISBN	9781424477777
e-ISBN	9781424477760
DOI	10.1109/ISTAS.2010.5514650
Language	English
Publisher	Institute of Electrical and Electronics Engineers, Inc. (IEEE)
Publisher Date	2010-06-07
Publisher Place	Australia
Access Restriction	Subscribed
Rights Holder	Institute of Electrical and Electronics Engineers, Inc. (IEEE)
Subject Keyword	Data privacy Australia Legislation Guidelines Medical services Protection Cancer Computers Multiple sclerosis Control theory
Content Type	Text
Resource Type	Article

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