NDLI: A privacy framework for secondary use of medical data

Content Provider	IEEE Xplore Digital Library
Author	Heath, J.
Copyright Year	2013
Description	Author affiliation: Centre for eHealth & Acad. Services Div., Univ. of Wollongong, Wollongong, NSW, Australia (Heath, J.)
Abstract	Secondary uses of medical data are not directly related to the delivery of healthcare to an individual and the provision of privacy within this context is increasingly challenging. This paper integrates theoretical and empirical research regarding privacy and proposes a privacy framework to support secondary use of medical data. Theoretical aspects consider two contemporary privacy theories and empirical aspects incorporate consumer survey results to propose a privacy framework for secondary use of medical data. This research is part of a larger study undertaken within the post-positivist and interpretive paradigms utilizing mixed methods. The proposed privacy framework engages healthcare consumers in decision making regarding the secondary use of their data.
Starting Page	174
Ending Page	179
File Size	316480
Page Count	6
File Format	PDF
ISSN	21583412
e-ISBN	9781479909292
DOI	10.1109/ISTAS.2013.6613116
Language	English
Publisher	Institute of Electrical and Electronics Engineers, Inc. (IEEE)
Publisher Date	2013-06-27
Publisher Place	Canada
Access Restriction	Subscribed
Rights Holder	Institute of Electrical and Electronics Engineers, Inc. (IEEE)
Subject Keyword	Privacy Data privacy Context Medical services Medical diagnostic imaging Australia information privacy theory privacy data management secondary use medical data
Content Type	Text
Resource Type	Article

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

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