NDLI: Health information exchanges--Unfulfilled promise as a data source for clinical research.

Please wait, while we are loading the content...

Year: 2017 Volume: 100

Year: 2017 Volume: 99

Year: 2017 Volume: 98

Year: 2017 Volume: 97

Year: 2016 Volume: 96

Year: 2016 Volume: 95

Year: 2016 Volume: 94

Year: 2016 Volume: 93

Year: 2016 Volume: 92

Year: 2016 Volume: 91

Year: 2016 Volume: 90

Year: 2016 Volume: 89

Year: 2016 Volume: 88

Year: 2016 Volume: 87

Health information exchanges--Unfulfilled promise as a data source for clinical research.

Barriers to patient participation in a self-management and education website Renal PatientView: A questionnaire-based study of inactive users.

Optimizing the user interface of a data entry module for an electronic patient record for cardiac rehabilitation: A mixed method usability approach.

The moderating effects of demographic and individual characteristics on nurses' acceptance of information systems: A canadian study.

The effect of registry-based performance feedback via short text messages and traditional postal letters on prescribing parenteral steroids by general practitioners--A randomized controlled trial.

Factors affecting physicians' use of a dedicated overview interface in an electronic health record: The importance of standard information and standard documentation.

Effects of eHealth for patients and informal caregivers confronted with cancer: A meta-review.

Health information exchange and information gaps in referrals to a pediatric emergency department.

The impact of post-adoption beliefs on the continued use of health apps.

Attitudes toward medical and genetic confidentiality in the Saudi research biobank: An exploratory survey.

A review of randomized controlled trials of medical record powered clinical decision support system to improve quality of diabetes care.

Use of a remote clinical decision support service for a multicenter trial to implement prediction rules for children with minor blunt head trauma.

Eliciting end-user expectations to guide the implementation process of a new electronic health record: A case study using concept mapping.

Year: 2016 Volume: 86

Year: 2016 Volume: 85

Year: 2015 Volume: 84

Year: 2014 Volume: 83

Year: 2013 Volume: 82

Year: 2012 Volume: 81

Year: 2011 Volume: 80

Year: 2010 Volume: 79

Year: 2009 Volume: 78

Year: 2008 Volume: 77

Year: 2007 Volume: 76

Health information exchanges--Unfulfilled promise as a data source for clinical research.

Content Provider	World Health Organization (WHO)-Global Index Medicus
Author	Parker, Carol Weiner, Michael Reeves, Mathew
Description	Author Affiliation: Parker C ( Academic Affairs Michigan State University, College of Human Medicine, 965 East Fee Hall, East Lansing, MI 48824 USA); Weiner M ( Center for Health Services Research, Regenstrief Institute, Inc., Indiana University Center for Health Services and Outcomes Research Center for Health Information and Communication, Department of Veterans Affairs, Veterans Health Administration, Health Services Research and Development Service CIN 13-416, Richard L. Roudebush Veterans Affairs Medical Center, 1050 Wishard Boulevard, 5th floor, Indianapolis, IN 46202 USA.); Reeves M ( Department of Epidemiology and Biostatistics, Michigan State University, College of Human Medicine, 965 East Fee Hall, East Lansing, MI 48824 USA.)
Abstract	OBJECTIVE: To determine the use of health information exchange organizations (HIEs) to support and conduct clinical research. MATERIALS AND METHODS: This scoping review included US-based studies published between January 2003 and March 2014 that used data from an HIE to address at least one of three categories of research: clinical or epidemiological research, financial evaluation, or utilization of health services. Eligibility was not restricted to research on HIEs. Studies with research questions outside of the evaluation of HIEs themselves were sought. RESULTS: Eighteen articles met final study inclusion criteria from an initial list of 847 hits. Fifteen studies addressed a clinical or epidemiological research question, 6 addressed a financial consideration, and 8 addressed a utilization issue. Considerable overlap was found among the research categories: 13 articles addressed more than one category. Of the eighteen included studies, only two used HIE data to answer a research objective that was NOT specific to HIE use. Research designs were varied and ranged from observational studies, such as cohort and cross-sectional studies, to randomized trials. The 18 articles represent the involvement of a small number of HIEs; 7 of the studies were from a single HIE. DISCUSSION: This review demonstrates that HIE-provided information is available and used to answer clinical or epidemiological, financial, or utilization-based research questions; however, the majority of the studies using HIE data are done with the primary goal of evaluating the use and impact of HIEs on health care delivery and outcomes. As HIEs mature and become integrated parts of the health care industry, the authors anticipate that fewer studies will be published that describe or validate the role of HIEs, and more will use HIEs as multi-institutional data sources for conducting clinical research and improving health services and clinical outcomes. CONCLUSION: Articles identified in this review indicate the limited extent that HIE data are being used for clinical research outside of the evaluation of HIEs themselves, as well as the limited number of specific HIEs that are involved in generating published research. Significant barriers exist that prevent HIEs from developing into an invaluable resource for clinical research including technological infrastructure limitations, business processes limiting secondary use of data, and lack of participating provider support. Research to better understand challenges to developing the necessary infrastructure and policies to foster HIE engagement in research would be valuable as HIEs represent an opportunity to engage non-traditional health care provider research partners.
File Format	HTM / HTML
ISSN	13865056
Journal	International Journal of Medical Informatics
Volume Number	87
e-ISSN	18728243
Language	English
Publisher	Elsevier
Publisher Date	2016-03-01
Publisher Place	Ireland
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Discipline Medical Informatics Electronic Health Records Utilization Health Information Exchange Health Services Research Humans Journal Article Research Support, U.s. Gov't, Non-p.h.s. Review
Content Type	Text
Resource Type	Article
Subject	Health Informatics

Central Library (ISO-9001:2015 Certified)
Indian Institute of Technology Kharagpur
Kharagpur, West Bengal, India | PIN - 721302

See location in the Map
03222 282435
Mail: support@ndl.gov.in

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in