NDLI: Developing the Native People for Cancer Control Telehealth Network.

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Developing the Native People for Cancer Control Telehealth Network.

Content Provider	World Health Organization (WHO)-Global Index Medicus
Author	Doorenbos, Ardith Z. Demiris, George Towle, Cara Kundu, Anjana Revels, Laura Colven, Roy Norris, Thomas E. Buchwald, Dedra
Spatial Coverage	United States Washington Alaska
Description	Country affiliation: United States Author Affiliation: Doorenbos AZ ( Biobehavioral Nursing & Health Systems, School of Nursing, University of Washington, Seattle, Washington 98195, USA. doorenbo@uw.edu)
Abstract	OBJECTIVE: We aimed to develop a telehealth network to deliver postdiagnosis cancer care clinical services and education to American Indian and Alaska Native patients, their families, and their healthcare providers. We also sought to identify the challenges and opportunities of implementing such a telehealth-based application for this rural and underserved population. MATERIALS AND METHODS: We followed a participatory formative evaluation approach to engage all stakeholders in the telehealth network design and implementation. This approach allowed us to identify and address technical and infrastructure barriers, lack of previous experience with telehealth, and political, legal, and historical challenges. RESULTS: Between September 2006 and August 2009, nine tribal clinics in Washington and 26 clinical sites in Alaska had participated in the telehealth network activities. Network programming included cancer education presentations, case conferences, and cancer survivor support groups. Twenty-seven cancer education presentations were held, with a total provider attendance of 369. Forty-four case conferences were held, with a total of 129 cases discussed. In total, 513 patient encounters took place. Keys to success included gaining provider and community acceptance, working closely with respected tribal members, understanding tribal sovereignty and governance, and working in partnership with cultural liaisons. CONCLUSION: The telehealth network exceeded expectations in terms of the number of participating sites and the number of patients served. Following a participatory formative evaluation approach contributed to the success of this telehealth network and demonstrated the importance of community involvement in all stages of telehealth system design and implementation.
File Format	HTM / HTML
ISSN	15305627
e-ISSN	15563669
DOI	10.1089/tmj.2010.0101
Journal	Telemedicine and e-Health
Issue Number	1
Volume Number	17
Language	English
Publisher	Mary Ann Liebert, Inc.
Publisher Date	2011-01-01
Publisher Place	United States
Access Restriction	Open
Subject Keyword	Discipline Medical Informatics Indians, North American Statistics & Numerical Data Inuits Neoplasms Diagnosis Telemedicine Organization & Administration Alaska Clinical Competence Community-based Participatory Research Delivery Of Health Care Health Knowledge, Attitudes, Practice Health Services Accessibility Patient Education As Topic Program Development Program Evaluation Self-help Groups Washington Research Support, N.i.h., Extramural Research Support, U.s. Gov't, P.h.s.
Content Type	Text
Resource Type	Article
Subject	Health Information Management Health Informatics

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