NDLI: Community-based participatory research in a large cohort study of chronic diseases among Alaska native adults.

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Community-based participatory research in a large cohort study of chronic diseases among Alaska native adults.

Content Provider	World Health Organization (WHO)-Global Index Medicus
Author	Redwood, Diana Lanier, Anne Kemberling, Melissa Klejka, Joseph Sylvester, Ileen Lundgren, Kari
Spatial Coverage	Alaska
Description	Country affiliation: United States Author Affiliation: Redwood D ( Alaska Native Tribal Health Consortium Epidemiology Center, AK, USA.)
Abstract	BACKGROUND: In 2001, the National Cancer Institute (NCI) funded a project to develop methods to recruit American Indian and Alaska Native (AI/AN) adults for a prospective cohort study of chronic disease risk and protective factors. OBJECTIVE: We describe how the use of community-based participatory research (CBPR) principles led to more effective study design and implementation in a study in Alaska. METHODS: CBPR elements included collaboration between researchers and tribes at all stages of the project, capacity building through training AI/AN staff in research methods, and knowledge dissemination through presentations, newsletters, and individual and community health feedback based on results of the study. RESULTS: Between March 2004 and August 2006, 3,821 AI/ AN adults from 26 Alaskan communities enrolled in the study. Retention in the study is high, with over 88% of participants successfully completing a 2-year follow-up questionnaire. CONCLUSION: CBPR methods have facilitated effective development of study methods, recruitment and retention. Efforts are on-going to continue work with this unique AI/AN research participant community.
File Format	HTM / HTML
ISSN	15570541
Issue Number	4
Volume Number	4
e-ISSN	1557055X
Journal	Progress in Community Health Partnerships: Research, Education, and Action
Language	English
Publisher	Johns Hopkins University Press
Publisher Date	2010-01-01
Publisher Place	United States
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Discipline Public Health Chronic Disease Ethnology Community-based Participatory Research Organization & Administration Indians, North American Inuits Alaska Epidemiology Capacity Building Cohort Studies Cooperative Behavior Humans Information Dissemination Patient Selection Prospective Studies Research Design Risk Factors Journal Article
Content Type	Text
Resource Type	Article
Subject	Sociology and Political Science Education Medicine Health (social science)

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

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