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Breast cancer in the Arctic – changes over the past decades

A decade of research in Inuit children, youth, and maternal health in Canada: areas of concentrations and scarcities

Climate change and zoonotic infections in the Russian Arctic

Obesity studies in the circumpolar Inuit: a scoping review

Self-rated health and ethnicity: focus on indigenous populations

Alcohol in Greenland 1951–2010: consumption, mortality, prices

Design and methods of the Adult Inuit Health Survey 2007–2008

Daily variations in ambulance calls for selected causes in Arkhangelsk, Russia: potential role of excessive alcohol consumption on weekends

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Population-based study of high plasma C-reactive protein concentrations among the Inuit of Nunavik

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Poor self-reported health and its association with biomarkers among Canadian Inuit

Socioeconomic characteristics and health outcomes in Sami speaking municipalities and a control group in northern Norway

A Wellness Course for Community Health Workers in Alaska: “wellness lives in the heart of the community”

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Survival of Sami cancer patients

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Innovative primary care delivery in rural Alaska: a review of patient encounters seen by community health aides

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The health of Inuit children under age 6 in Canada

The Northern Norway mother-and-child contaminant cohort study: implementation, population characteristics and summary of dietary findings

Modern contact investigation methods for enhancing tuberculosis control in Aboriginal communities

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Alaska Native people's perceptions, understandings, and expectations for research involving biological specimens

Incidence of pancreatic cancer in Greenland 2000–2010

Assessment of consumption of marine food in Greenland by a food frequency questionnaire and biomarkers

Cancer patterns in Inuit Nunangat: 1998–2007

How occupational health is assessed in mine workers in Murmansk Oblast

Fatal hypothermia: an analysis from a sub-arctic region

Increasing rates of diabetes amongst status Aboriginal youth in Alberta, Canada

A traditional Sami diet score as a determinant of mortality in a general northern Swedish population

Association between socioeconomic status and overweight and obesity among Inuit adults: International Polar Year Inuit Health Survey, 2007–2008

Sense of coherence and self-reported health among Roma people in Sweden – a pilot study

Room for improvement in diabetes care among First Nations in northern Quebec (Eeyou Istchee): reasonable management of glucose but poor management of complications

High prevalence of lactase non-persistence among indigenous nomadic Nenets, north-west Russia

Treatment eligibility in Alaska Native and American Indian persons with hepatitis C virus infection

Mycoplasma genitalium presence, resistance and epidemiology in Greenland

Mammographic screening in Sami speaking municipalities and a control group. Are early outcome measures influenced by ethnicity?

Level of selected toxic elements in meat, liver, tallow and bone marrow of young semi-domesticated reindeer (Rangifer tarandus tarandus L.) from Northern Norway

Bachelor studies for nurses organised in rural contexts – a tool for improving the health care services in circumpolar region?

Preterm birth in the Inuit and First Nations populations of Québec, Canada, 1981–2008

Physical activity and fitness in 8-year-old overweight and normal weight children and their parents

Health consumption in Sami speaking municipalities and a control group with regard to medical imaging

Occurrence of pancreatic, biliary tract, and gallbladder cancers in Alaska Native people, 1973–2007

Gender differences in comorbidity of conduct disorder among adolescents in Northern Finland

Oral health in a First Nations and a non-Aboriginal population in Manitoba

Dietary quality and adequacy among Aboriginal alcohol consumers in the Northwest Territories, Canada

Design and methods in a survey of living conditions in the Arctic – the SLiCA study

Factors related to fruit, vegetable and traditional food consumption which may affect health among Alaska Native People in Western Alaska

Metabolic profile in two physically active Inuit groups consuming either a western or a traditional Inuit diet

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A longitudinal study of the effect of Antarctic residence on energy dynamics and aerobic fitness

Traditional food consumption behaviour and concern with environmental contaminants among Cree schoolchildren of the Mushkegowuk territory

The impact of Action Schools! BC on the health of Aboriginal children and youth living in rural and remote communities in British Columbia

Level and temporal trend of perfluoroalkyl acids in Greenlandic Inuit

Inuit women's attitudes and experiences towards cervical cancer and prevention strategies in Nunavik, Quebec

Level of selected nutrients in meat, liver, tallow and bone marrow from semi-domesticated reindeer (Rangifer t. tarandus L.)

Sami-speaking municipalities and a control group's access to somatic specialist health care (SHC): a retrospective study on general practitioners’ referrals

No association between temperature and deaths from cardiovascular and cerebrovascular diseases during the cold season in Astana, Kazakhstan – the second coldest capital in the world

Against the stream: relevance of gluconeogenesis from fatty acids for natives of the arctic regions

Demographic and contextual factors associated with inhalant use among youth in rural Alaska

Addressing challenges in participatory research partnerships in the North: opening a conversation

Community-based Participatory Process – Climate Change and Health Adaptation Program for Northern First Nations and Inuit in Canada

Being useful: achieving indigenous youth involvement in a community-based participatory research project in Alaska

Challenges created by data dissemination and access restrictions when attempting to address community concerns: individual privacy versus public wellbeing

Youth researching youth: benefits, limitations and ethical considerations within a participatory research process

Knowledge translation in Arctic environmental health

The best of two worlds: how the Greenland Board of Nutrition has handled conflicting evidence about diet and health

Dietary recommendations regarding pilot whale meat and blubber in the Faroe Islands

From science to action and from action to science: the Nunavik Trichinellosis Prevention Program

Lead exposure in Nunavik: from research to action

Dietary exposure to persistent organic pollutants and metals among Inuit and Chukchi in Russian Arctic Chukotka

Translational research to reduce trans-fat intakes in Northern Québec (Nunavik) Inuit communities: a success story?

Vitamin D deficiency among northern Native Peoples: a real or apparent problem?

The international biological program/human adaptability studies among the Skolt Sami in Finland (1966–1970)

Reply to W.B. Grant ‘Re: Vitamin D deficiency among northern Native Peoples’

Re: Vitamin D deficiency among northern Native Peoples

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Challenges created by data dissemination and access restrictions when attempting to address community concerns: individual privacy versus public wellbeing

Content Provider	Taylor & Francis Online
Author	Geary, Janis Colquhoun, Amy Aplin, Laura Goodman, Karen J. Hatcher, Juanita
Abstract	Background : Population health data are vital for the identification of public health problems and the development of public health strategies. Challenges arise when attempts are made to disseminate or access anonymised data that are deemed to be potentially identifiable. In these situations, there is debate about whether the protection of an individual's privacy outweighs potentially beneficial public health initiatives developed using potentially identifiable information. While these issues have an impact at planning and policy levels, they pose a particular dilemma when attempting to examine and address community concerns about a specific health problem. Methods : Research currently underway in northern Canadian communities on the frequency of Helicobacter pylori infection and associated diseases, such as stomach cancer, is used in this article to illustrate the challenges that data controls create on the ability of researchers and health officials to address community concerns. Results : Barriers are faced by public health professionals and researchers when endeavouring to address community concerns; specifically, provincial cancer surveillance departments and community-driven participatory research groups face challenges related to data release or access that inhibit their ability to effectively address community enquiries. The resulting consequences include a limited ability to address misinformation or to alleviate concerns when dealing with health problems in small communities. Conclusions : The development of communication tools and building of trusting relationships are essential components of a successful investigation into community health concerns. It may also be important to consider that public wellbeing may outweigh the value of individual privacy in these situations. As such, a re-evaluation of data disclosure policies that are applicable in these circumstances should be considered.
File Format	PDF HTM / HTML
ISSN	22423982
DOI	10.3402/ijch.v71i0.18414
Journal	International Journal of Circumpolar Health
Volume Number	71
Issue Number	1
Language	English
Publisher	Taylor & Francis
Publisher Date	2012-05-08
Access Restriction	Open
Subject Keyword	Aboriginal health Canada Helicobacter pylori Cancer Circumpolar regions Confidentiality
Content Type	Text
Resource Type	Article
Subject	Health (social science) Public Health, Environmental and Occupational Health Epidemiology

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