NDLI: Exploration of clinical ethics consultation in Uganda: a case study of Uganda Cancer Institute

Content Provider	Springer Nature : BioMed Central
Author	Nanyonga, Mayi Mayega Kutyabami, Paul Kituuka, Olivia Sewankambo, Nelson K.
Abstract	Introduction Globally, healthcare providers (HCPs), hospital administrators, patients and their caretakers are increasingly confronted with complex moral, social, cultural, ethical, and legal dilemmas during clinical care. In high-income countries (HICs), formal and informal clinical ethics support services (CESSs) have been used to resolve bioethical conflicts among HCPs, patients, and their families. There is limited evidence about mechanisms used to resolve these issues as well as experiences and perspectives of the stakeholders that utilize them in most African countries including Uganda. Methods This phenomenological qualitative study utilized in-depth interviews (IDIs) and focus group discussions (FGDs) to collect data from Uganda Cancer Institute (UCI) staff, patients, and caretakers who were purposively selected. Data was analyzed deductively and inductively yielding themes and sub-themes that were used to develop a codebook. Results The study revealed there was no formal committee or mechanism dedicated to resolving ethical dilemmas at the UCI. Instead, ethical dilemmas were addressed in six forums: individual consultations, tumor board meetings, morbidity and mortality meetings (MMMs), core management meetings, rewards and sanctions committee meetings, and clinical departmental meetings. Participants expressed apprehension regarding the efficacy of these fora due to their non-ethics related agendas as well as members lacking training in medical ethics and the necessary experience to effectively resolve ethical dilemmas. Conclusion The fora employed at the UCI to address ethical dilemmas were implicit, involving decisions made through various structures without the guidance of personnel well-versed in medical or clinical ethics. There was a strong recommendation from participants to establish a multidisciplinary clinical ethics committee comprising members who are trained, skilled, and experienced in medical and clinical ethics.
Related Links	https://bmcmedethics.biomedcentral.com/counter/pdf/10.1186/s12910-024-01085-1.pdf
Ending Page	14
Page Count	14
Starting Page	1
File Format	HTM / HTML
ISSN	14726939
DOI	10.1186/s12910-024-01085-1
Journal	BMC Medical Ethics
Issue Number	1
Volume Number	25
Language	English
Publisher	BioMed Central
Publisher Date	2024-08-09
Access Restriction	Open
Subject Keyword	Ethics Philosophy of Medicine Theory of Medicine Bioethics Ethical dilemmas Ethical issues Clinical ethics consultation Clinical ethics support services Uganda Theory of Medicine/Bioethics
Content Type	Text
Resource Type	Article
Subject	Issues, Ethics and Legal Aspects Health Policy Health (social science)
Journal Impact Factor	3/2023
5-Year Journal Impact Factor	3.1/2023

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

Exploring how IBCLCs manage ethical dilemmas: a qualitative study

Clinical ethics revisited: responses

“Systematizing” Ethics Consultation Services

Action ethical dilemmas in surgery: an interview study of practicing surgeons

Comparison of ethical judgments exhibited by clients and ethics consultants in Japan

Research, education, ethics consultation: evaluating a Bioethics Unit in an Oncological Research Hospital

Defining ethical challenge(s) in healthcare research: a rapid review

Personal health monitoring in the armed forces – scouting the ethical dimension

Ethical practice in my work: community health workers’ perspectives using photovoice in Wakiso district, Uganda

Exploration of clinical ethics consultation in Uganda: a case study of Uganda Cancer Institute

Similar Documents

Exploring how IBCLCs manage ethical dilemmas: a qualitative study

Clinical ethics revisited: responses

“Systematizing” Ethics Consultation Services

Action ethical dilemmas in surgery: an interview study of practicing surgeons

Comparison of ethical judgments exhibited by clients and ethics consultants in Japan

Research, education, ethics consultation: evaluating a Bioethics Unit in an Oncological Research Hospital

Defining ethical challenge(s) in healthcare research: a rapid review

Personal health monitoring in the armed forces – scouting the ethical dimension

Ethical practice in my work: community health workers’ perspectives using photovoice in Wakiso district, Uganda

Exploration of clinical ethics consultation in Uganda: a case study of Uganda Cancer Institute