NDLI: Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries

Content Provider	Springer Nature : BioMed Central
Author	Rich, Anna Baldwin, David Alfageme, Inmaculada Beckett, Paul Berghmans, Thierry Brincat, Stephen Burghuber, Otto Corlateanu, Alexandru Cufer, Tanja Damhuis, Ronald Danila, Edvardas Domagala-Kulawik, Joanna Elia, Stefano Gaga, Mina Goksel, Tuncay Grigoriu, Bogdan Hillerdal, Gunnar Huber, Rudolf Maria Jakobsen, Erik Jonsson, Steinn Jovanovic, Dragana Kavcova, Elena Konsoulova, Assia Laisaar, Tanel Makitaro, Riitta Mehic, Bakir Milroy, Robert Moldvay, Judit Morgan, Ross Nanushi, Milda Paesmans, Marianne Putora, Paul Martin Samarzija, Miroslav Scherpereel, Arnaud Schlesser, Marc Sculier, Jean-Paul Skrickova, Jana Sotto-Mayor, Renato Strand, Trond-Eirik Van Schil, Paul Blum, Torsten-Gerriet
Abstract	Background A minority of European countries have participated in international comparisons with high level data on lung cancer. However, the nature and extent of data collection across the continent is simply unknown, and without accurate data collection it is not possible to compare practice and set benchmarks to which lung cancer services can aspire. Methods Using an established network of lung cancer specialists in 37 European countries, a survey was distributed in December 2014. The results relate to current practice in each country at the time, early 2015. The results were compiled and then verified with co-authors over the following months. Results Thirty-five completed surveys were received which describe a range of current practice for lung cancer data collection. Thirty countries have data collection at the national level, but this is not so in Albania, Bosnia-Herzegovina, Italy, Spain and Switzerland. Data collection varied from paper records with no survival analysis, to well-established electronic databases with links to census data and survival analyses. Conclusion Using a network of committed clinicians, we have gathered validated comparative data reporting an observed difference in data collection mechanisms across Europe. We have identified the need to develop a well-designed dataset, whilst acknowledging what is feasible within each country, and aspiring to collect high quality data for clinical research.
Related Links	https://bmccancer.biomedcentral.com/counter/pdf/10.1186/s12885-018-5009-y.pdf
Ending Page	12
Page Count	12
Starting Page	1
File Format	HTM / HTML
ISSN	14712407
DOI	10.1186/s12885-018-5009-y
Journal	BMC Cancer
Issue Number	1
Volume Number	18
Language	English
Publisher	BioMed Central
Publisher Date	2018-11-20
Access Restriction	Open
Subject Keyword	Cancer Research Oncology Surgical Oncology Health Promotion and Disease Prevention Biomedicine Medicine Public Health Lung Cancer Epidemiology Audit Data collection Datasets Medicine/Public Health
Content Type	Text
Resource Type	Article
Subject	Cancer Research Oncology Genetics
Journal Impact Factor	3.4/2023
5-Year Journal Impact Factor	3.8/2023

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1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
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