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Mobile self-management guide for young men with mild hemophilia in cases of minor injuries

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Network Modeling Analysis in Health Informatics and Bioinformatics : Volume 2

Network Modeling Analysis in Health Informatics and Bioinformatics : Volume 1

Mobile self-management guide for young men with mild hemophilia in cases of minor injuries

Content Provider	Springer Nature Link
Author	Lomotey, Richard K. Deters, Ralph Nilson, JoAnn Mulder, Kathy Schachter, Candice Wittmeier, Kristy
Copyright Year	2014
Abstract	Hemophilia is a group of inherited disorders where a defect or absence of a clotting factor protein limits the ability of the blood to clot following injury. The most common form is Hemophilia A; it is classified as severe, moderate or mild. Those with severe and moderate Hemophilia are likely to experience bleeding into joints and muscles following minor injury and are advised to limit participation in rough activities. Those with milder disorders usually experience bleeds only after significant injury, and may participate in vigorous sports with few consequences. As a result, they sometimes ‘forget’ that they have Hemophilia, and are slow to recognize injuries which may require treatment. In our ongoing project, we designed a mobile app which is a self-assessment guide for young men with mild hemophilia. The mobile application guides the user in assessing suspected bleeds, applying appropriate first aid, and locating the nearest hemophilia treatment center. In this paper, we detail the architectural design of the mobile app (“HIRT?”). We proposed a three-layered distributed system architecture comprised of the mobile devices, a cloud-oriented proxy and a database server where user feedback is stored for further analysis. The proxy framework is designed to address the challenges of network latency in mobile environments since the primary means of communication is over wireless media. Preliminary evaluation of the proposed system shows high performance boost in terms of the minimization of latency. Furthermore, the usability test shows that the application is convenient to use by both mobile techies and non-techies.
Starting Page	1
Ending Page	10
Page Count	10
File Format	PDF
ISSN	21926662
Journal	Network Modeling Analysis in Health Informatics and Bioinformatics
Volume Number	3
Issue Number	1
e-ISSN	21926670
Language	English
Publisher	Springer Vienna
Publisher Date	2014-07-08
Publisher Place	Vienna
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Computational Biology/Bioinformatics Cloud computing Mobile devices Proxy Hemophilia Database Complex Networks Health Informatics Distributed system Bioinformatics
Content Type	Text
Resource Type	Article
Subject	Urology

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

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Mobile self-management guide for young men with mild hemophilia in cases of minor injuries

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Are you HIRT? (Hemophilia Injury Recognition Tool): Perceptions from young men with mild hemophilia in Canada on the use of the mobile app for injury self-management

A cloud-based system for enhancing security of Android devices

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Mobile self-management guide for young men with mild hemophilia in cases of minor injuries