NDLI: Families of Children with Spina Bifida: A Review

Content Provider	Springer Nature Link
Author	Singh, Delar K.
Copyright Year	2003
Abstract	Spina bifida is a congenital condition of the nervous system. It typically results in paralysis of the lower limbs, hydrocephalus, incontinence of bowel and bladder, lack of sensation below the lesion, and dislocated hips. Children with spina bifida have to cope with lifelong medical care. Despite the fact that spina bifida dates back to Stone Age, its etiology remains unknown. Families of children with spina bifida have received some research attention. Researchers have primarily examined the ways in which spina bifida impinges upon the family's finances, parents' physical/emotional health, marital relationships, social life, caretaking responsibilities, care of other children, attitude toward the disabled child, and career/social/recreational opportunities. However, because of several methodological limitations, the current research findings are inconclusive. There is need for longitudinal studies to really understand the impact of spina bifida on the family. Also, in view of the research that shows spina bifida adults are comparable to their nondisabled peers on significant psychological variables, there is need to understand strengths and positive coping strategies of families of children with spina bifida.
Starting Page	37
Ending Page	55
Page Count	19
File Format	PDF
ISSN	1056263X
Journal	Journal of Developmental and Physical Disabilities
Volume Number	15
Issue Number	1
e-ISSN	15733580
Language	English
Publisher	Kluwer Academic Publishers-Plenum Publishers
Publisher Date	2003-01-01
Publisher Place	New York
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Public Health/Gesundheitswesen Pediatrics Clinical Psychology Developmental Psychology
Content Type	Text
Resource Type	Article
Subject	Developmental and Educational Psychology Physical Therapy, Sports Therapy and Rehabilitation

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

Partner Support and Maternal Stress in Families Raising Young Children with Cerebral Palsy

Concordance of Physical Activity Among Parents and Youth with Physical Disabilities

Neuropsychological Profile of Stuttering Children

Maltreatment and Developmental Disabilities in Children

Pharmacotherapy of Autism: A Review and Clinical Approach

A Play Package for Children with Severe Disabilities: A Validation

Executive Function in School-Aged Children with Phenylketonuria

Subclassification of Children with a Pervasive Developmental Disorder: Assignment to Social Subtypes

Families of Children with Developmental Disabilities: Assessment and Comparison of Self-Reported Needs in Relation to Situational Variables

Families of Children with Spina Bifida: A Review

Similar Documents

Partner Support and Maternal Stress in Families Raising Young Children with Cerebral Palsy

Concordance of Physical Activity Among Parents and Youth with Physical Disabilities

Neuropsychological Profile of Stuttering Children

Maltreatment and Developmental Disabilities in Children

Pharmacotherapy of Autism: A Review and Clinical Approach

A Play Package for Children with Severe Disabilities: A Validation

Executive Function in School-Aged Children with Phenylketonuria

Subclassification of Children with a Pervasive Developmental Disorder: Assignment to Social Subtypes

Families of Children with Developmental Disabilities: Assessment and Comparison of Self-Reported Needs in Relation to Situational Variables

Families of Children with Spina Bifida: A Review