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Desenvolvimento da versão portuguesa do celiac disease questionnaire / Development of the Portuguese Version of the Celiac Disease Questionnaire
| Content Provider | Semantic Scholar |
|---|---|
| Author | Lobão, Catarina Gonçalves, Rui Abrunhosa Monteiro, Baltazar Ricardo |
| Copyright Year | 2013 |
| Abstract | ABSTRACT Celiac disease is characterized as a permanent and chronic intolerance to the gluten ingestion. The only effective treatment is the lifelong gluten-free diet, which implies radical changes in the patient’s life and eating habits with a constant challenge and potential shifts in their health-related quality of life. The health-related quality of life occupies an important place as a research subject in different areas of human activity. However we do not found in the literature specific instruments adapted to the Portuguese reality that could measure the health-related quality of life in celiac patients. Then our goal is to develop the Portuguese version of the Celiac Disease Questionnaire - CDQ (developed by Dr. Winfried Hauser team in 2007), which may contribute to the identification of factors that influence the adult celiac patients health-related quality of life. We carried out the translation, cultural and functional equivalence of measures with a preliminary study. Subsequently we applied the CDQ to 231 celiac patients and proceeded with a component analysis and reliability. As in the original version, the analysis of the Portuguese version suggests the existence of a four dimensions model with a KMO coefficient of 0.897. Nevertheless, we obtained a different item factor loading in each dimension: emotional experience, social participation, fears and concerns, gastrointestinal symptoms. For each dimension the Cronbach's α ranged from 0.71 to 0.89 and an overall value of 0.91. The Portuguese version of the CDC proved to be a specific instrument for health-related quality of life assessment in adult celiac patients. RESUMO A doenca celiaca caracteriza-se como uma intolerância permanente e cronica a ingestao de gluten. O unico tratamento eficaz e a restricao de gluten da alimentacao de forma definitiva, o que implica uma mudanca radical nos habitos alimentares e na vida da pessoa, constituindo um constante desafio e com potenciais alteracoes na sua percecao de qualidade de vida. Ocupando o estudo da qualidade de vida um alvo de interesse em diversas areas da atividade humana, nao encontramos na literatura todavia instrumentos, adaptados a realidade portuguesa, que pudessem avaliar a percecao de qualidade de vida na pessoa celiaca adulta. Foi entao nosso objetivo desenvolver a versao portuguesa do Celiac Disease Questionnaire - CDQ (desenvolido pela equipa do Doutor Winfried Hauser em 2007), que possa contribuir para a identificacao de fatores que influenciam a percecao de qualidade de vida da pessoa celiaca adulta. Procedemos a traducao e equivalencia das medidas a nivel cultural e funcional atraves da realizacao de um estudo preliminar. Aplicamos posteriormente o CDQ a 231 pessoas celiacas adultas e procedemos a sua analise fatorial e consistencia interna. Tal como na versao original, a analise da estrutura fatorial da versao portuguesa sugere a existencia de quatro dimensoes com um coeficiente KMO de 0,897. Todavia, obtivemos um agrupamento diferente dos itens em cada uma das dimensoes: experiencia emocional, participacao social, medos e preocupacao, sintomas gastrointestinais. Para cada dimensao o α de Cronbach variou entre 0,71 e 0,89 e o valor de 0,91 no global. A versao portuguesa do CDC revelou-se um instrumento especifico de avaliacao da percecao de qualidade de vida sensivel e capaz de avaliar de forma individual e especifica alguns aspectos da populacao celiaca adulta. |
| File Format | PDF HTM / HTML |
| DOI | 10.37467/gka-revsocial.v2.1229 |
| Volume Number | 2 |
| Alternate Webpage(s) | https://journals.epistemopolis.org/index.php/csociales/article/download/1229/787 |
| Alternate Webpage(s) | https://doi.org/10.37467/gka-revsocial.v2.1229 |
| Language | English |
| Access Restriction | Open |
| Content Type | Text |
| Resource Type | Article |
