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Participation of People with Dementia in Developing an Interactive Web Tool
| Content Provider | Semantic Scholar |
|---|---|
| Author | Span, Marijke Hettinga, Marike Ven, L. Groen Van De Jukema, J. Wouter Janssen, Ruud Vernooij-Dassen, Myrra J. M. Eefsting, Jan A. Smits, Carolien |
| Copyright Year | 2017 |
| Abstract | Purpose The aim of this study was to gain insight into the ways in which people with dementia participated in developing the DecideGuide, an interactive web tool facilitating shared decision-making in their care networks. Methods An explanatory case study design was used when developing the DecideGuide. A secondary analysis focused on the data gathered from the participating people with dementia during the development stages: semi-structured interviews (n=23), four focus groups with a total of 18 participants, three usability tests, and a pilot study with 4 participants. Framework analysis was applied to the data. Results People with dementia participated especially as informants and advisors in most phases of the development. Four themes proved to be important regarding the impact of the participation by people with dementia: influence on content and design of the DecideGuide, motivation to participate, time investment, and the balance between challenge and concern. Conclusions People with dementia can give essential feedback and, therefore, their contribution is valuable. Other roles than informant and advisor need to be explored. Significant participation of people with dementia takes time that should be taken into account. It is important for people with dementia to be able to reciprocate the efforts others make and to feel of significance to others. |
| Starting Page | 346 |
| Ending Page | 346 |
| Page Count | 1 |
| File Format | PDF HTM / HTML |
| DOI | 10.1093/geroni/igx004.1267 |
| Volume Number | 1 |
| Alternate Webpage(s) | http://dare.ubvu.vu.nl/bitstream/handle/1871/54018/chapter%206%20participation.pdf?isAllowed=y&sequence=11 |
| Alternate Webpage(s) | https://doi.org/10.1093/geroni%2Figx004.1267 |
| Language | English |
| Access Restriction | Open |
| Content Type | Text |
| Resource Type | Article |
