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Involving people with dementia in developing an interactive web tool for shared decision-making: experiences with a participatory design approach.
| Content Provider | Semantic Scholar |
|---|---|
| Author | Span, Marijke Hettinga, Marike Ven, Leontine Groen-Van De Jukema, J. Wouter Janssen, Ruud Vernooij-Dassen, Myrra Eefsting, Jan A. Smits, Carolien H. M. |
| Copyright Year | 2018 |
| Abstract | PURPOSE The aim of this study was at gaining insight into the participatory design approach of involving people with dementia in the development of the DecideGuide, an interactive web tool facilitating shared decision-making in their care networks. METHOD An explanatory case study design was used when developing the DecideGuide. A secondary analysis focused on the data gathered from the participating people with dementia during the development stages: semi-structured interviews (n = 23), four focus group interviews (n = 18), usability tests (n = 3), and a field study (n = 4). Content analysis was applied to the data. RESULTS Four themes showed to be important regarding the participation experiences of involving people with dementia in research: valuable feedback on content and design of the DecideGuide, motivation to participate, perspectives of people with dementia and others about distress related to involvement, and time investment. CONCLUSIONS People with dementia can give essential feedback and, therefore, their contribution is useful and valuable. Meaningful participation of people with dementia takes time that should be taken into account. It is important for people with dementia to be able to reciprocate the efforts others make and to feel of significance to others. Implications for Rehabilitation People with dementia can contribute meaningfully to the content and design and their perspective is essential for developing useful and user-friendly tools. Participating in research activities may contribute to social inclusion, empowerment, and quality of life of people with dementia. |
| Starting Page | 1410 |
| Ending Page | 1420 |
| Page Count | 11 |
| File Format | PDF HTM / HTML |
| DOI | 10.1080/09638288.2017.1298162 |
| PubMed reference number | 28286969 |
| Journal | Medline |
| Volume Number | 40 |
| Issue Number | 12 |
| Alternate Webpage(s) | https://surfsharekit.nl/dl/windesheim/eec17c95-9ef3-4a15-b736-a9c958554b87/069b8325-8728-4f66-bb18-a26cfb063924 |
| Alternate Webpage(s) | https://doi.org/10.1080/09638288.2017.1298162 |
| Journal | Disability and rehabilitation |
| Language | English |
| Access Restriction | Open |
| Content Type | Text |
| Resource Type | Article |
