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Co-designing an Integrated Care Network With People Living With Parkinson’s Disease: From Patients’ Narratives to Trajectory Analysis
| Content Provider | SAGE Publishing |
|---|---|
| Author | Sylvie, Grosjean Coma, Jordi Farré Ota, Gal Aoife, Laffan Anna, Sendra Johanne, Stuempel Tiago, Mestre |
| Copyright Year | 2021 |
| Abstract | An integrated care model for people living with Parkinson’s disease (PD) offers the promise of meeting complex care needs in a person-centered way that addresses fragmentation and improves quality of life. The purpose of our research was to co-design a care delivery model that supports both social and medical care from the perspective of patients and care partners. In the first step of our co-design approach, participants from five countries were invited to share their experiences of living with PD during a narrative interview. A qualitative analysis of these narrative interviews based on the Corbin and Strauss model was done to map out patients’ trajectories. Three typical trajectories were identified: (a) the “unpredictable” trajectory, (b) the “situated” trajectory, and (c) the “demanding” trajectory. Based on the analysis of these trajectories, we were able to integrate various patient experiences into the design of an integrated care network. |
| Related Links | https://journals.sagepub.com/doi/pdf/10.1177/10497323211042605?download=true |
| Starting Page | 2585 |
| Ending Page | 2601 |
| Page Count | 17 |
| ISSN | 10497323 |
| Issue Number | 14 |
| Volume Number | 31 |
| Journal | Qualitative Health Research (QHR) |
| e-ISSN | 15527557 |
| DOI | 10.1177/10497323211042605 |
| Language | English |
| Publisher | Sage Publications CA |
| Publisher Date | 2021-10-11 |
| Publisher Place | Los Angeles |
| Access Restriction | Open |
| Rights Holder | © The Author(s) 2021 |
| Subject Keyword | integrated care co-design trajectory Canada Parkinson’s disease narrative interviews patients’ experience Europe |
| Content Type | Text |
| Resource Type | Article |
| Subject | Public Health, Environmental and Occupational Health |
