NDLI: Co-Designing an Integrated Care Network with People Living with Parkinson's Disease: A Heterogeneous Social Network of People, Resources and Technologies

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Co-Designing an Integrated Care Network with People Living with Parkinson's Disease: A Heterogeneous Social Network of People, Resources and Technologies

Content Provider	MDPI
Author	Am, élie Gauthier-Beaupré Poitras, Emely Grosjean, Sylvie Mestre, Tiago A. Consortium, iC A. R.E-P D.
Copyright Year	2022
Description	As part of the iCARE-PD project, a multinational and multidisciplinary research endeavour to address complex care in Parkinson’s disease, a Canadian case study focused on gaining a better understanding of people living with Parkinson’s disease (PwP) experiences with health and medical services, particularly their vision for a sustainable, tailored and integrated care delivery network. The multifaceted nature of the condition means that PwP must continuously adapt and adjust to every aspect of their lives, and progressively rely on support from care partners (CP) and various health care professionals (HCP). To envision the integrated care delivery network from the perspective of PwP, the study consisted of designing scenarios for an integrated care delivery network with patients, their CP and their HCP, as well as identifying key requirements for designing an integrated care delivery network. The results demonstrate that numerous networks interact, representing specific inscriptions, actors and mediators who meet at specific crossing points. This resulted in the creation of a roadmap and toolkit that takes into consideration the unique challenges faced by PwP, and the necessity for an integrated care delivery network that can be personalized and malleable so as to adapt to evolving and changing needs over time.
Starting Page	1001
e-ISSN	20754426
DOI	10.3390/jpm12061001
Journal	Journal of Personalized Medicine
Issue Number	6
Volume Number	12
Language	English
Publisher	MDPI
Publisher Date	2022-06-19
Access Restriction	Open
Subject Keyword	Journal of Personalized Medicine Information and Library Science Parkinson's Disease Integrated Care Network Co-design Actor-network Theory Qualitative Research Ehealth Technologies Care Partners Health Care Professionals
Content Type	Text
Resource Type	Article

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