NDLI: Primary immunodeficiency disease: a model for case management of chronic diseases.

Please wait, while we are loading the content...

Primary immunodeficiency disease: a model for case management of chronic diseases.

Content Provider	World Health Organization (WHO)-Global Index Medicus
Author	Burton, Janet Murphy, Elyse Riley, Patty
Spatial Coverage	United States
Description	Country affiliation: United kingdom Author Affiliation: Burton J ( National Health Service, Oxford, England. janet.burton@orh.nhs.uk)
Abstract	PURPOSE/OBJECTIVES: Patient-centered chronic care management is a new model for the management of rare chronic diseases such as primary immunodeficiency disease (PIDD). This approach emphasizes helping patients become experts on the management of their disease as informed, involved, and interactive partners in healthcare decisions with providers. Because only a few patients are affected by rare illnesses, these patients are forced to become knowledgeable about their disease and therapies and to seek treatment from a healthcare team, which includes physicians and nurse specialists who are equipped to manage the complexity of the disease and its comorbidities. Importantly, therapy for PIDD can be self-administered at home, which has encouraged the transition toward a proactive stance that is at the heart of patient-centered chronic care management. We discuss the evolution of therapy, the issues with the disease, and challenges with its management within the framework of other chronic disease management programs. Suggestions and rationale to move case management of PIDD forward are presented with the intent that sharing our experiences will improve process and better manage outcomes in this patient population. PRIMARY PRACTICE SETTINGS: The patient-centered model for the management of PIDD is applicable to the primary care settings, where nurse case managers assist patients through education, support them and their families, and facilitate access to community resources in an approach, which has been described as 'guided care.' The model also applies specifically to immunology centers where patients receive treatment or instruction on its self-administration at home. FINDINGS/CONCLUSIONS: Patient-centered management of PIDD, with its emphasis on full involvement of patients in their treatment, has the potential to improve compliance with treatment, and thus patient outcomes, as well as patients' quality of life. IMPLICATIONS FOR CASE MANAGEMENT: The patient-centered model expands the traditional model of chronic disease management, which relies on evidence-based medicine, provider expertise, clinical information systems, and patient education. This approach supports patient self-management with strategies that empower and prepare them for their role as expert patients.
File Format	HTM / HTML
ISSN	19328087
Issue Number	1
Volume Number	15
e-ISSN	19328095
Journal	Professional Case Management
Language	English
Publisher	Lippincott, Williams & Wilkins
Publisher Date	2010-01-01
Publisher Place	United States
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Discipline Health Services Case Management Disease Management Immunologic Deficiency Syndromes Nursing Patient-centered Care Chronic Disease Humans Epidemiology Incidence Models, Nursing Nurse-patient Relations Patient Participation United States Journal Article Research Support, Non-u.s. Gov't Review
Content Type	Text
Resource Type	Article
Subject	Leadership and Management Care Planning Assessment and Diagnosis Health Policy

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

Providing patient-centered care demands: professional diversity in case management.

People matter.

Patient-centered care and engagement: nurse leaders' imperative for health reform.

Keeping case management practice strong: avoiding fragmentation through a patient-centered approach.

The best interest of the patient.

Patient-centered case management.

Case managing ourselves.

Slow down! We're moving too fast!

Supporting disease management through intervention in the medical home.

Primary immunodeficiency disease: a model for case management of chronic diseases.

Similar Documents

Providing patient-centered care demands: professional diversity in case management.

People matter.

Patient-centered care and engagement: nurse leaders' imperative for health reform.

Keeping case management practice strong: avoiding fragmentation through a patient-centered approach.

The best interest of the patient.

Patient-centered case management.

Case managing ourselves.

Slow down! We're moving too fast!

Supporting disease management through intervention in the medical home.

Primary immunodeficiency disease: a model for case management of chronic diseases.