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| Content Provider | World Health Organization (WHO)-Global Index Medicus |
|---|---|
| Author | Marshall, Patricia A. Magtanong, Ruth V. Leek, Angela C. Hizlan, Sabahat Yamokoski, Amy D. Kodish, Eric D. |
| Description | Country affiliation: United States Author Affiliation: Marshall PA ( Center for Genetic Research Ethics and Law, Department of Bioethics, School of Medicine, Case Western Reserve University, Cleveland, Ohio, USA.) |
| Abstract | During informed consent conferences (ICCs) for Phase I trials, oncologists must present complex information while addressing concerns. Research on communication that evolves during ICCs remains largely unexplored. We examined communication during ICCs for pediatric Phase I cancer trials using a stratified random sample from six pediatric cancer centers. A grounded theory approach identified key communication steps and factors influencing the negotiation of decisions for trial participation. Analysis suggests that during ICCs, families, patients, and clinicians exercise choice and control by negotiating micro-decisions in two broad domains: drug logic and logistics, and administration/scheduling. Micro-decisions unfold in a four-step communication process: (1) introduction of an issue; (2) response; (3) negotiation of the issue; and (4) resolution and decision. Negotiation over smaller micro-decisions is prominent in ICCs and merits further study. |
| File Format | HTM / HTML |
| ISSN | 15562646 |
| e-ISSN | 15562654 |
| DOI | 10.1525/jer.2012.7.2.51 |
| Journal | Journal of Empirical Research on Human Research Ethics: An International Journal |
| Issue Number | 2 |
| Volume Number | 7 |
| Language | English |
| Publisher | Sage Publication |
| Publisher Date | 2012-04-01 |
| Publisher Place | United States |
| Access Restriction | Open |
| Subject Keyword | Discipline Ethics Decision Making Informed Consent Ethics Negotiating Neoplasms Patient Selection Third-party Consent Choice Behavior Clinical Trials, Phase I As Topic Research Support, N.i.h., Extramural |
| Content Type | Text |
| Resource Type | Article |
| Subject | Education Medicine Law Social Psychology Communication |
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