NDLI: Identifying disease-specific distress in patients with inflammatory bowel disease.

Content Provider	World Health Organization (WHO)-Global Index Medicus
Author	Woodward, Sue Dibley, Lesley Coombes, Sarah Bellamy, Andrew Clark, Calum Czuber-Dochan, Wladyslawa Everelm, Leslie Kutner, Sandra Sturt, Jackie Norton, Christine
Description	Author Affiliation: Woodward S ( Head of Clinical Education, Florence Nightingale Faculty of Nursing and Midwifery, King's College London.); Dibley L ( Lecturer, Florence Nightingale Faculty of Nursing and Midwifery, King's College London.); Coombes S ( Student, Florence Nightingale Faculty of Nursing and Midwifery, King's College London.); Bellamy A ( Patient representative.); Clark C ( Patient representative.); Czuber-Dochan W ( Tutor, Florence Nightingale Faculty of Nursing and Midwifery, King's College London.); Everelm L ( Patient representative.); Kutner S ( Patient representative.); Sturt J ( Professor, Florence Nightingale Faculty of Nursing and Midwifery, King's College London.); Norton C ( Florence Nightingale Faculty of Nursing and Midwifery, King's College London.)
Abstract	OBJECTIVES: Inflammatory bowel disease (IBD) imposes a significant burden on patients. The authors have noticed an underlying presence of distress, seemingly distinct from anxiety and depression, in qualitative data collected for previous studies. Disease-related distress has been explored in diabetes, but has not been addressed in IBD. The authors aimed to determine the presence of IBD distress to inform development of a scale for assessing the phenomenon. METHODS: This three-phase study used (1) a conceptual framework based on diabetes distress to conduct secondary analysis of qualitative data from four previous IBD studies (n=49 transcripts). Patient advisors confirmed the themes identified as causing distress, which guided (2) a focus group with people with IBD (n=8) and (3) items generated from phase 1 and 2 were subsequently used for a modified Delphi survey of IBD health professionals. RESULTS: Five IBD-distress themes were identified: emotional distress; healthcare-related distress; interpersonal/social distress; treatment-related distress; and symptom-related distress. DISCUSSION: Disease-specific distress in IBD was identified and is distinct from stress, anxiety and depression. Some causes of IBD distress overlap with diabetes distress, but existing diabetes-distress scales do not explain all the distress experienced by people with IBD and development of a new IBD-distress scale is warranted.
File Format	HTM / HTML
ISSN	09660461
Issue Number	12
Journal	British Journal of Nursing
Volume Number	25
e-ISSN	20522819
Language	English
Publisher	MA Healthcare
Publisher Date	2016-06-23
Publisher Place	Great Britain (UK)
Access Restriction	Subscribed
Subject Keyword	Discipline Nursing
Content Type	Text
Resource Type	Article
Subject	Nursing

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