NDLI: Evaluation of the use of a parent questionnaire to provide later health status data: the PANDA study.

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Evaluation of the use of a parent questionnaire to provide later health status data: the PANDA study.

Content Provider	World Health Organization (WHO)-Global Index Medicus
Author	Field, David Spata, Edi Davies, Thomas Manktelow, Brad Johnson, Samantha Boyle, Elaine Draper, Elizabeth S.
Description	Country affiliation: United kingdom Author Affiliation: Field D ( Department of Health Sciences, University of Leicester, Leicester, UK.); Spata E ( Department of Health Sciences, University of Leicester, Leicester, UK.); Davies T ( Department of Health Sciences, University of Leicester, Leicester, UK.); Manktelow B ( Department of Health Sciences, University of Leicester, Leicester, UK.); Johnson S ( Department of Health Sciences, University of Leicester, Leicester, UK.); Boyle E ( Department of Health Sciences, University of Leicester, Leicester, UK.); Draper ES ( Department of Health Sciences, University of Leicester, Leicester, UK.)
Abstract	BACKGROUND: Routine comparable outcome data collection relating to the later health status of babies born very preterm has long been considered important, but has not been achieved in the UK. AIM: To test the potential for a parental questionnaire to provide these data for all eligible babies from a geographical population. METHODS: Consent for follow-up by questionnaire (using the Parent Report of Children's Abilities-Revised combined with questions derived from the Oxford minimum dataset) was sought for all babies ≤30â weeks of gestation, discharged from a hospital in the East Midlands and Yorkshire regions of the UK, having been born between 1 January 2007 and 31 December 2011. RESULTS: The rate of consent to participate in follow-up showed a steady increase over time to 83.1% in 2011. However, the response rate in terms of completion and return of the questionnaire at 2â years, as a proportion of those eligible, showed little change over time, varying between 42% and 46%. Among those children where a questionnaire was returned, the rate of disability was broadly consistent over time: lowest in 2009, 21.0% (95% CI 16.8% to 25.6%) and highest in 2011, 25.5% (95% CI 21.5% to 31.2%). The instruments used appeared effective with the capability of discriminating between children with physical and/or cognitive disability. CONCLUSIONS: The overall response rate in terms of returned questionnaires was disappointing and inadequate to recommend for implementation. It is possible that response rates would have been higher had clinical follow-up been linked to the data obtained from the questionnaires rather than running as a parallel process.
File Format	HTM / HTML
ISSN	13592998
Issue Number	4
Journal	Archives of Disease in Childhood - Fetal and Neonatal Edition
Volume Number	101
e-ISSN	14682052
Language	English
Publisher	BMJ Publishing Group
Publisher Date	2016-07-01
Publisher Place	Great Britain (UK)
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Discipline Pediatrics Discipline Perinatology
Content Type	Text
Resource Type	Article
Subject	Pediatrics, Perinatology and Child Health Obstetrics and Gynecology

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