NDLI: Global Health in Preconception, Pregnancy and Postpartum Alliance: development of an international consumer and community involvement framework

Content Provider	Springer Nature : BioMed Central
Author	Bergmeier, Heidi J. Vandall-Walker, Virginia Skrybant, Magdalena Teede, Helena J. Bailey, Cate Baxter, Jo-Anna B. Borges, Ana Luiza Vilela Boyle, Jacqueline A. Everitt, Ayesha Harrison, Cheryce L. Herrera, Margely Hill, Briony Jack, Brian Jones, Samuel Jorgensen, Laura Lim, Siew Montanaro, Cynthia Redman, Leanne M. Stephenson, Judith Sundseth, Hildrun Thangaratinam, Shakila Thynne, Paula Walker, Ruth Skouteris, Helen
Abstract	Background The goal of the Global Health in Preconception, Pregnancy and Postpartum (HiPPP) Alliance, comprising consumers and leading international multidisciplinary academics and clinicians, is to generate research and translation priorities and build international collaboration around healthy lifestyle and obesity prevention among women across the reproductive years. In doing so, we actively seek to involve consumers in research, implementation and translation initiatives. There are limited frameworks specifically designed to involve women across the key obesity prevention windows before (preconception), during and after pregnancy (postpartum). The aim of this paper is to outline our strategy for the development of the HiPPP Consumer and Community (CCI) Framework, with consumers as central to co-designed, co-implemented and co-disseminated research and translation. Method The development of the framework involved three phases: In Phase 1, 21 Global HiPPP Alliance members participated in a CCI workshop to propose and discuss values and approaches for framework development; Phase 2 comprised a search of peer-reviewed and grey literature for existing CCI frameworks and resources; and Phase 3 entailed collaboration with consumers (i.e., members of the public with lived experience of weight/lifestyle issues in preconception, pregnancy and postpartum) and international CCI experts to workshop and refine the HiPPP CCI Framework (guided by Phases 1 and 2). Results The HiPPP CCI Framework’s values and approaches identified in Phases 1–2 and further refined in Phase 3 were summarized under the following five key principles: 1. Inclusive, 2. Flexible, 3. Transparent, 4. Equitable, and 5. Adaptable. The HiPPP Framework describes values and approaches for involving consumers in research initiatives from design to translation that focus on improving healthy lifestyles and preventing obesity specifically before, during and after pregnancy; importantly it takes into consideration common barriers to partnering in obesity research during perinatal life stages, such as limited availability associated with family caregiving responsibilities. Conclusion The HiPPP CCI Framework aims to describe approaches for implementing meaningful CCI initiatives with women in preconception, pregnancy and postpartum periods. Evaluation of the framework is now needed to understand how effective it is in facilitating meaningful involvement for consumers, researchers and clinicians, and its impact on research to improve healthy lifestyle outcomes.
Related Links	https://researchinvolvement.biomedcentral.com/counter/pdf/10.1186/s40900-020-00218-1.pdf
Ending Page	13
Page Count	13
Starting Page	1
File Format	HTM / HTML
ISSN	20567529
DOI	10.1186/s40900-020-00218-1
Journal	Research Involvement and Engagement
Issue Number	1
Volume Number	6
Language	English
Publisher	BioMed Central
Publisher Date	2020-08-10
Access Restriction	Open
Subject Keyword	Medicine Public Health Preconception Pregnancy Postpartum Obesity Consumer and community involvement Framework Patient and public involvement Stakeholder engagement Medicine/Public Health
Content Type	Text
Resource Type	Article
Subject	Health Professions Health (social science)

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

Key issues for stakeholder engagement in the development of health and healthcare guidelines

Inclusion of people with multiple long-term conditions in pregnancy research: patient, public and stakeholder involvement and engagement in a randomised controlled trial

Embedding consumer and community involvement within an established research centre: moving from general recommendations to an actionable framework

Musculoskeletal pain stakeholder engagement and partnership development: determining patient-centered research priorities

Positioning patients to partner: exploring ways to better integrate patient involvement in the learning health systems

Exploring barriers and solutions to consumer involvement in health service research using a nominal group technique

“Still learning and evolving in our approaches”: patient and stakeholder engagement among Canadian community-based primary health care researchers

Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiences

Co-creating a patient and public involvement and engagement ‘how to’ guide for researchers

Global Health in Preconception, Pregnancy and Postpartum Alliance: development of an international consumer and community involvement framework

Similar Documents

Key issues for stakeholder engagement in the development of health and healthcare guidelines

Inclusion of people with multiple long-term conditions in pregnancy research: patient, public and stakeholder involvement and engagement in a randomised controlled trial

Embedding consumer and community involvement within an established research centre: moving from general recommendations to an actionable framework

Musculoskeletal pain stakeholder engagement and partnership development: determining patient-centered research priorities

Positioning patients to partner: exploring ways to better integrate patient involvement in the learning health systems

Exploring barriers and solutions to consumer involvement in health service research using a nominal group technique

“Still learning and evolving in our approaches”: patient and stakeholder engagement among Canadian community-based primary health care researchers

Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiences

Co-creating a patient and public involvement and engagement ‘how to’ guide for researchers

Global Health in Preconception, Pregnancy and Postpartum Alliance: development of an international consumer and community involvement framework