NDLI: Addressing unmet basic needs for children with sickle cell disease in the United States: clinic and staff perspectives

Content Provider	Springer Nature : BioMed Central
Author	Loo, Stephanie Brochier, Annelise Wexler, Mikayla Gordon Long, Kristin Kavanagh, Patricia L. Garg, Arvin Drainoni, Mari-Lynn
Abstract	Background The purpose of this study was to assess pediatric hematology clinic staff’s perspectives regarding barriers and facilitators in addressing unmet basic needs for children with sickle cell disease (SCD). Methodology Six focus groups were held at four urban pediatric hematology clinics in the Northeastern region of the United States from November to December 2019. Discussion questions were developed to align with the integrated Promoting Action on Research Implementation in Health Services (i-PARIHS) implementation science framework, focusing on the domains of context and recipient and how clinics address adverse social determinants of health (SDoH) in their patient populations. A summative content analytical approach was taken to identify major themes in the data. Results We discerned the following themes: (1) families of children with SCD experience numerous unmet basic needs; (2) clinic staff believed they had a role to play in addressing these unmet basic needs; (3) staff felt their ability to address families’ unmet basic needs depended upon caregivers’ capacity to act on staff’s recommendations; and (4) clinic staff’s ability to address these needs was limited by organizational and systemic factors beyond their control. Conclusions These findings have important implications for how best to address adverse SDoH for this vulnerable pediatric population so that urban-based pediatric hematology clinics can more equitably support families.
Related Links	https://bmchealthservres.biomedcentral.com/counter/pdf/10.1186/s12913-020-06055-y.pdf
Ending Page	8
Page Count	8
Starting Page	1
File Format	HTM / HTML
ISSN	14726963
DOI	10.1186/s12913-020-06055-y
Journal	BMC Health Services Research
Issue Number	1
Volume Number	21
Language	English
Publisher	BioMed Central
Publisher Date	2021-01-12
Access Restriction	Open
Subject Keyword	Public Health Health Administration Health Informatics Nursing Research Social determinants of health Unmet basic needs Pediatric hematology Sickle cell disease Clinical staff perceptions
Content Type	Text
Resource Type	Article
Subject	Health Policy

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

Addressing patient’s unmet social needs: disparities in access to social services in the United States from 1990 to 2014, a national times series study

Assessing psychosocial risk factors in children with Sickle Cell Disease

Technology, data, people, and partnerships in addressing unmet social needs within Medicaid Managed Care

Social determinants of health and treatment center affiliation: analysis from the sickle cell disease implementation consortium registry

Do healthcare providers consider the social determinants of health? Results from a nationwide cross-sectional study in the United States

Financial strain and resilience: a qualitative exploration of parental perspectives on caring for children with sickle cell disease in Ghana

Social needs screening and referral in pediatric primary care clinics: a multiple case study

Caregiver experiences with accessing sickle cell care and the use of telemedicine

Identifying and addressing health-related social needs: a Medicaid member perspective

Addressing unmet basic needs for children with sickle cell disease in the United States: clinic and staff perspectives

Similar Documents

Addressing patient’s unmet social needs: disparities in access to social services in the United States from 1990 to 2014, a national times series study

Assessing psychosocial risk factors in children with Sickle Cell Disease

Technology, data, people, and partnerships in addressing unmet social needs within Medicaid Managed Care

Social determinants of health and treatment center affiliation: analysis from the sickle cell disease implementation consortium registry

Do healthcare providers consider the social determinants of health? Results from a nationwide cross-sectional study in the United States

Financial strain and resilience: a qualitative exploration of parental perspectives on caring for children with sickle cell disease in Ghana

Social needs screening and referral in pediatric primary care clinics: a multiple case study

Caregiver experiences with accessing sickle cell care and the use of telemedicine

Identifying and addressing health-related social needs: a Medicaid member perspective

Addressing unmet basic needs for children with sickle cell disease in the United States: clinic and staff perspectives