NDLI: Who is being referred to cancer genetic counseling? Characteristics of counselees and their referral

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Journal of Community Genetics : Volume 3, Issue 2, April 2012

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Journal of Community Genetics : Volume 2

Journal of Community Genetics : Volume 1

Who is being referred to cancer genetic counseling? Characteristics of counselees and their referral

Content Provider	Springer Nature Link
Author	Riel, E. Dulmen, S. Ausems, M. G. E. M.
Copyright Year	2012
Abstract	Both physician and patient play a role in the referral process for cancer genetic counseling. Access to such counseling is not optimal because some eligible patients are not being reached by current referral practice. We aimed to identify factors associated with the initiator of referral. During a 7-month period, we recorded demographic characteristics like gender, personal and family history of cancer, ethnicity and eligibility for genetic testing for 406 consecutive counselees using a specially designed questionnaire. Counselees were seen in a university hospital or a community hospital (n = 7) in the Netherlands. We also recorded educational level of each counselee, clinical setting and who initiated referral. Descriptive statistics were used to describe the counselees’ general characteristics. We analysed the association between counselee characteristics and the initiator of referral by logistic regression. The majority of counselees seemed to have initiated referral themselves but were indeed eligible for genetic testing. In comparison to the general population in the Netherlands, the counselees had a higher level of education, and there were fewer immigrants, although a higher level of education was not found to be a facilitating factor for referral. The clinical setting where a counselee was seen was associated with initiator of referral, although this relationship was not straightforward. There is a complex interaction between clinical setting and initiator of referral, which warrants further research to elucidate the factors involved in this relationship. Patients seen in cancer genetic counseling do not reflect the general population in terms of educational level or ethnicity.
Starting Page	265
Ending Page	274
Page Count	10
File Format	PDF
ISSN	1868310X
Journal	Journal of Community Genetics
Volume Number	3
Issue Number	4
e-ISSN	18686001
Language	English
Publisher	Springer-Verlag
Publisher Date	2012-03-17
Publisher Place	Berlin, Heidelberg
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Cancer genetic counseling Initiative Referral process Education Accessibility Gene Function Human Genetics Epidemiology Public Health Gene Therapy
Content Type	Text
Resource Type	Article
Subject	Public Health, Environmental and Occupational Health Epidemiology Genetics (clinical)

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Who is being referred to cancer genetic counseling? Characteristics of counselees and their referral

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