NDLI: Consenting postpartum women for use of routinely collected biospecimens and/or future biospecimen collection

Content Provider	Springer Nature Link
Author	Kozinetz, Claudia A. Royse, Kathryn Graham, Sarah C. Yu, Xiaoying Moye, Jack Selwyn, Beatrice J. Forman, Michele R. Caviness, Chantal
Copyright Year	2016
Abstract	The National Children’s Study (NCS) Harris County, Texas Study Center participated in the NCS Provider Based Sampling (PBS) substudy of the NCS Vanguard Phase pilot. As part of the hospital-based birth cohort component of the PBS substudy, we conducted a secondary data analysis to evaluate the proportion of postpartum women who consented to future biospecimen collection alone and to both future collection and use of residual birth biospecimens. In phase 1, 32 postpartum women at one hospital were asked to consent only to maternal future biospecimen collection. In phase 2, 40 other postpartum women from the same hospital were asked for an additional consent to use residual clinical biospecimens from the birth event that otherwise would be discarded, including cord blood and maternal blood and urine. Among 103 eligible women, a total of 72 participated. They were 28.3 ± 5.9 years old on average; 58 % were Hispanic; 63 % consented in English, and 37 % in Spanish; 39 % had some college education; 42 % were married; 60 % had an annual family income <$30,000; and 51 % were employed. In phase 1, 59 % consented to future biospecimen collection, and in phase 2, 95 % consented to both future collection and use of at least one residual birth biospecimen, with a difference between phases of 36 % [95 % CI 17–54 %]. Demographic characteristics did not differ among those who did and did not consent. Postpartum women were significantly more likely to grant consent for use of future and residual hospital-obtained biospecimens than future biospecimen collection alone.
Starting Page	153
Ending Page	158
Page Count	6
File Format	PDF
ISSN	1868310X
Journal	Journal of Community Genetics
Volume Number	7
Issue Number	2
e-ISSN	18686001
Language	English
Publisher	Springer Berlin Heidelberg
Publisher Date	2016-02-11
Publisher Place	Berlin, Heidelberg
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Residual Biospecimen Postpartum Consent Human Genetics Public Health Epidemiology Gene Therapy Gene Function
Content Type	Text
Resource Type	Article
Subject	Public Health, Environmental and Occupational Health Epidemiology Genetics (clinical)

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