NDLI: Preconception care and genetic risk: ethical issues

Content Provider	Springer Nature Link
Author	Wert, Guido M. W. R. Dondorp, Wybo J. Knoppers, Bartha M.
Copyright Year	2011
Abstract	Preconception care to address genetic risks in reproduction may be offered either individually to couples with a known or suspected increased risk of having a child with a genetic disorder, or systematically to couples or individuals of reproductive age. The identification of couples at risk of transmitting a (serious) genetic disorder allows those couples to refrain from having children or to adapt their reproductive plans (using prenatal or preimplantation diagnosis, donor gametes, or adoption). Ethical issues concern the possible objectives of providing these options through preconception genetic counseling or screening, objections to abortion and embryo-selection, concerns about eugenics and medicalization, and issues arising in the professional–client relationship and/or in the light of the normative framework for population screening. Although enhancing reproductive autonomy rather than prevention should be regarded as the primary aim of preconception care for genetic risks, directive counseling may well be acceptable in exceptional cases, and prevention in the sense of avoiding serious suffering may be an appropriate objective of specific community-based preconception screening programmes. The seemingly unavoidable prospect of comprehensive preconception screening raises further ethical issues.
Starting Page	221
Ending Page	228
Page Count	8
File Format	PDF
ISSN	1868310X
Journal	Journal of Community Genetics
Volume Number	3
Issue Number	3
e-ISSN	18686001
Language	English
Publisher	Springer-Verlag
Publisher Date	2011-12-29
Publisher Place	Berlin, Heidelberg
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Gene Therapy Epidemiology Human Genetics Gene Function Public Health/Gesundheitswesen
Content Type	Text
Resource Type	Article
Subject	Public Health, Environmental and Occupational Health Epidemiology Genetics (clinical)

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