NDLI: The effect of a celebrity health disclosure on demand for health care: trends in BRCA testing and subsequent health services use

Content Provider	Springer Nature Link
Author	Roberts, Megan C. Dusetzina, Stacie B.
Copyright Year	2017
Abstract	In May 2013, an internationally renowned celebrity—Angelina Jolie—disclosed her receipt of BRCA1/BRCA2 (BRCA) testing and subsequent double mastectomy in a highly publicized editorial. Publicity surrounding celebrity health services use increases awareness of important health issues and demand for health services. We aimed to describe BRCA testing trends before and after Jolie’s disclosure, breast cancer-related services use following testing, and test reimbursement trends. MarketScan Commercial Claims data were used to compare trends in BRCA testing before and after Jolie’s health disclosure using an interrupted time series model among women aged 18–64. We used modified Poisson regression to estimate risks for health services use (surgical consult, mastectomy, mammography, magnetic resonance imaging, genetic counseling) following BRCA testing. BRCA testing rates increased from 12.5 to 19.0 tests/100,000 women between January 2013 and October 2014. Immediately following Jolie’s disclosure, testing increased by approximately 37% (p < 0.001). Although BRCA testing increased, use of post-testing follow-up services declined after Jolie’s disclosure. Mean insurance reimbursement and patient out-of-pocket spending on the test decreased by 3 and 36%, respectively. While genetic testing uptake increased following Jolie’s disclosure, subsequent health services use associated with BRCA mutations declined, suggesting that celebrity disclosures may be associated with potential genetic testing overuse.
Starting Page	141
Ending Page	146
Page Count	6
File Format	PDF
ISSN	1868310X
Journal	Journal of Community Genetics
Volume Number	8
Issue Number	2
e-ISSN	18686001
Language	English
Publisher	Springer Berlin Heidelberg
Publisher Date	2017-03-15
Publisher Place	Berlin, Heidelberg
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Genetic testing Breast cancer Costs Health services use Human Genetics Public Health Epidemiology Gene Therapy Gene Function
Content Type	Text
Resource Type	Article
Subject	Public Health, Environmental and Occupational Health Epidemiology Genetics (clinical)

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

The effect of a celebrity health disclosure on demand for health care: trends in BRCA testing and subsequent health services use.

A cost analysis of a cancer genetic service model in the UK

BRCA sequencing and large rearrangement testing in young Black women with breast cancer

Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider

Genetic services and testing in South Africa

Genetic services and testing in China

Genetic services and testing in Brazil

Genetic testing and services in Argentina

Genetic services and testing in the Philippines

The effect of a celebrity health disclosure on demand for health care: trends in BRCA testing and subsequent health services use

Similar Documents

The effect of a celebrity health disclosure on demand for health care: trends in BRCA testing and subsequent health services use.

A cost analysis of a cancer genetic service model in the UK

BRCA sequencing and large rearrangement testing in young Black women with breast cancer

Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider

Genetic services and testing in South Africa

Genetic services and testing in China

Genetic services and testing in Brazil

Genetic testing and services in Argentina

Genetic services and testing in the Philippines

The effect of a celebrity health disclosure on demand for health care: trends in BRCA testing and subsequent health services use