NDLI: Closing Gaps: Strength-Based Approaches to Research with Aboriginal Children with Neurodevelopmental Disorders

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Closing Gaps: Strength-Based Approaches to Research with Aboriginal Children with Neurodevelopmental Disorders

Content Provider	Springer Nature Link
Author	Di Pietro, Nina Illes, Judy
Copyright Year	2016
Abstract	There is substantial literature on fetal alcohol spectrum disorder (FASD) research involving Aboriginal children, but little related literature on other common neurodevelopmental conditions such as autism spectrum disorder (ASD) or cerebral palsy (CP) for this population. As part of our work in cross-cultural neuroethics, we examined this phenomenon as a case study in Canada. We conducted semi-structured interviews with health researchers working on the frontline with First Nation communities to obtain perspectives about: (1) reasons for the lack of ASD and CP research within the Aboriginal context, (2) the potential ethical and social implications of this disparity, and (3) recommendations for change. Participants reported that the major barriers to engage in ASD or CP research are under-reporting and under-diagnosis of these conditions in Aboriginal communities, difficulties in establishing trust between community members and researchers, challenges in accessing children living under the care of child welfare services, and lack of support from universities and funding agencies to encourage community partnerships. They further perceived threats to justice as the population is denied the benefits of ASD and CP research, and stigma related to the possible over-representation of FASD in the population. The adoption of strength- and community-based practices to improve engagement and address disparities, and to create health databases with prevalence rates that are representative of all forms of disability in both Aboriginal and non-Aboriginal populations are critical steps to close these gaps.
Starting Page	243
Ending Page	252
Page Count	10
File Format	PDF
ISSN	18745490
Journal	Neuroethics
Volume Number	9
Issue Number	3
e-ISSN	18745504
Language	English
Publisher	Springer Netherlands
Publisher Date	2016-10-04
Publisher Place	Dordrecht
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Fetal alcohol spectrum disorder Neuroethics Health disparities Indigenous peoples Ethics Neurology Neurobiology Neurosurgery Neuropsychology Neuroradiology
Content Type	Text
Resource Type	Article
Subject	Philosophy Neurology Health Policy Psychiatry and Mental Health

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