NDLI: Developing a Capability-Based Questionnaire for Assessing Well-Being in Patients with Chronic Pain

Content Provider	Springer Nature Link
Author	Kinghorn, Philip Robinson, Angela Smith, Richard D.
Copyright Year	2014
Abstract	This paper reports a qualitative study which sought to operationalise Sen’s capability approach in the context of chronic pain. The resulting capability-instrument will allow treatments and services to be evaluated according to whether they enable users to achieve those things which they value in life. This is particularly important in chronic conditions, where the emphasis is often on helping the patient to live their life as fully as possible despite persistent symptoms. Participatory methods were used to identify a list of capabilities deemed important to those with chronic pain. Respondents were recruited through a Pain Management Clinic in the East of England (n = 16). Focus groups were followed-up by individual interviews (n = 6). The following eight capabilities were identified as being important: Love and social inclusion; Enjoyment; Respect and Identity; Remaining physically and mentally active; Independence and autonomy; Societal and family roles; Physical and mental well-being; Feeling secure about the future. These have been developed into a questionnaire for self-completion by service users. The impact of chronic pain on well-being extends well beyond health symptoms and the range of health functionings typically considered when evaluating services. The capability-instrument is intended to supplement current evidence by assessing what service users are enabled to do. In its current form it will also be a useful tool for those seeking to deliver patient-centred care. Additional research into valuation and a decision-rule will progress capability as a stand-alone alternative economic framework.
Starting Page	897
Ending Page	916
Page Count	20
File Format	PDF
ISSN	03038300
Journal	Social Indicators Research
Volume Number	120
Issue Number	3
e-ISSN	15730921
Language	English
Publisher	Springer Netherlands
Publisher Date	2014-04-20
Publisher Place	Dordrecht
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Capability Chronic pain Economic evaluation Quality of life UK Sociology Quality of Life Research Microeconomics Public Health Human Geography
Content Type	Text
Resource Type	Article
Subject	Sociology and Political Science Arts and Humanities Developmental and Educational Psychology

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

Economic Crisis and Well-Being in Europe: Introduction

Assessing Subjective Well-being in Chinese Older Adults: The Chinese Aging Well Profile

Dimensions of Subjective Well-Being

Child Well-being in Flanders: A Multidimensional Account

Financial Well-Being Components

Developing a Concept of Workplace Well-Being for Greater China

Further Examination of the Properties of the Workplace Well-Being Questionnaire (WWQ)

Participation and well-Being Among Older Adults Living with Chronic Conditions

Disparities in Quality of Life Among South Africans With and Without Disabilities

Developing a Capability-Based Questionnaire for Assessing Well-Being in Patients with Chronic Pain

Similar Documents

Economic Crisis and Well-Being in Europe: Introduction

Assessing Subjective Well-being in Chinese Older Adults: The Chinese Aging Well Profile

Dimensions of Subjective Well-Being

Child Well-being in Flanders: A Multidimensional Account

Financial Well-Being Components

Developing a Concept of Workplace Well-Being for Greater China

Further Examination of the Properties of the Workplace Well-Being Questionnaire (WWQ)

Participation and well-Being Among Older Adults Living with Chronic Conditions

Disparities in Quality of Life Among South Africans With and Without Disabilities

Developing a Capability-Based Questionnaire for Assessing Well-Being in Patients with Chronic Pain