NDLI: Validation of a Self-Concept Scale for Lynch Syndrome in Different Nationalities

Content Provider	Springer Nature Link
Author	Petersen, Helle Vendel Domanska, Katarina Bendahl, Pär Ola Wong, Jiahui Carlsson, Christina Bernstein, Inge Esplen, Mary Jane Nilbert, Mef
Copyright Year	2011
Abstract	Learning about hereditary cancer may influence an individual’s self-concept, which otherwise represents a complex but stable cognitive structure. Recently, a 20-statement self-concept scale, with subscales related to stigma-vulnerability and bowel symptom-related anxiety, was developed for Lynch syndrome. We compared the performance of this scale in 591 mutation carriers from Denmark, Sweden and Canada. Principal component analysis identified two sets of linked statements—the first related to feeling different, isolated and labeled, and the second to concern and worry about bowel changes. The scale performed consistently in the three countries. Minor differences were identified, with guilt about passing on a defective gene and feelings of losing one’s privacy being more pronounced among Canadians, whereas Danes more often expressed worries about cancer. Validation of the Lynch syndrome self-concept scale supports its basic structure, identifies dependence between the statements in the subscales and demonstrates its applicability in different Western populations.
Starting Page	308
Ending Page	313
Page Count	6
File Format	PDF
ISSN	10597700
Journal	Journal of Genetic Counseling
Volume Number	20
Issue Number	3
e-ISSN	15733599
Language	English
Publisher	Springer US
Publisher Date	2011-01-26
Publisher Place	Boston
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	HNPCC Hereditary nonpolyposis colorectal cancer Psychological impact Reliability Questionnaire Validity Ethics Human Genetics Clinical Psychology Public Health/Gesundheitswesen Gynecology
Content Type	Text
Resource Type	Article
Subject	Genetics (clinical)

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