NDLI: BRCA Genetic Counseling Among At-Risk Latinas in New York City: New Beliefs Shape New Generation

Content Provider	Springer Nature Link
Author	Sussner, Katarina M. Edwards, Tiffany Villagra, Cristina Rodriguez, M. Carina Thompson, Hayley S. Jandorf, Lina Valdimarsdottir, Heiddis B.
Copyright Year	2014
Abstract	Despite the life-saving information that genetic counseling can provide for women at hereditary breast and/or ovarian cancer (HBOC) risk, Latinas disproportionately underuse such services. Understanding Latinas’ beliefs and attitudes about BRCA genetic counseling may be the key to better health promotion within this underserved, at-risk group. We conducted 12 focus groups (N = 54) with at-risk Latina women in New York City, followed by 30 in-depth interviews among a subset of the focus group women. Both were professionally transcribed, translated where applicable and data analysis was completed by two coders trained in qualitative methods. Results revealed personal and community knowledge about BRCA genetic counseling was relatively low, although women felt largely positive about counseling. The main motivator to undergo genetic counseling was concerns about learning family members’ cancer status, while the main barrier was competing demands. Generational differences were apparent, with younger women (approximately <55 years) reporting that they were more interested in educating themselves about counseling and other ways to prevent cancer. Younger women were also less likely to ascribe to traditionally Latino-centered cultural beliefs which could serve as barriers (e.g. machismo, fatalismo, destino) to undergoing genetic counseling. Participants were largely enthusiastic about educational efforts to increase awareness of genetic counseling among Latinos. Revealing the beliefs and attitudes of underserved Latinas may help shape culturally appropriate educational materials and promotion programs to increase BRCA genetic counseling uptake within this underrepresented community.
Starting Page	134
Ending Page	148
Page Count	15
File Format	PDF
ISSN	10597700
Journal	Journal of Genetic Counseling
Volume Number	24
Issue Number	1
e-ISSN	15733599
Language	English
Publisher	Springer US
Publisher Date	2014-08-15
Publisher Place	Boston
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	BRCA Genetic counseling Latinas Breast cancer Human Genetics Public Health Clinical Psychology Gynecology Ethics
Content Type	Text
Resource Type	Article
Subject	Genetics (clinical)

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