NDLI: An Exploration of Parents’ Experiences and Empowerment in the Care for Preterm Born Children

Content Provider	Springer Nature Link
Author	Pal, Sylvia M. Alpay, Laurence L. Steenbrugge, Gert Jan Detmar, Symone B.
Copyright Year	2013
Abstract	Because of improved survival rates and medical prospects, the emphasis in care for preterm infants has shifted in recent years to a focus on support for the wellbeing of children and their families. For the healthcare professionals the parents of these children are the main partners for improving the care of their children. In this context, referring to “patient empowerment” implies not only the infant but also the parents, in other words “parent empowerment”. We aimed to explore parents’ experiences with hospital and aftercare for their preterm children, and the implications for parent empowerment, by organizing face-to-face (n = 4 and n = 7) and online (n = 14) focus group interviews with parents of preterm children. These focus group interviews showed that these parents indicated a lack of support and recognition of parental worries in the care for their infant during two important periods: (1) the transfer to another hospital and (2) after discharge home. These group interviews showed that parents greatly value initiatives that support and empower them in their role as parents and that strengthens their involvement in the care for their children. Requirements for enhancing parent empowerment are proposed.
Starting Page	1081
Ending Page	1089
Page Count	9
File Format	PDF
ISSN	10621024
Journal	Journal of Child and Family Studies
Volume Number	23
Issue Number	6
e-ISSN	15732843
Language	English
Publisher	Springer US
Publisher Date	2013-05-18
Publisher Place	Boston
Access Restriction	One Nation One Subscription (ONOS)
Subject Keyword	Preterm born infants Newborn infants Parents Parents’ experiences Parent empowerment Patient empowerment Aftercare Child and School Psychology Social Sciences Sociology
Content Type	Text
Resource Type	Article
Subject	Life-span and Life-course Studies Developmental and Educational Psychology

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
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9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

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