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| Content Provider | Springer Nature Link |
|---|---|
| Author | Haas, Kaaren Costley, Debra Falkmer, Marita Richdale, Amanda Sofroff, Kate Falkmer, Torbjörn |
| Copyright Year | 2016 |
| Abstract | Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant’s values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants. |
| Starting Page | 1793 |
| Ending Page | 1805 |
| Page Count | 13 |
| File Format | |
| ISSN | 01623257 |
| Journal | Journal of Autism and Developmental Disorders |
| Volume Number | 46 |
| Issue Number | 5 |
| e-ISSN | 15733432 |
| Language | English |
| Publisher | Springer US |
| Publisher Date | 2016-01-25 |
| Publisher Place | New York |
| Access Restriction | One Nation One Subscription (ONOS) |
| Subject Keyword | Autism Asperger syndrome Incentive Longitudinal studies Motivation Research recruitment Research participation Child and School Psychology Pediatrics Neurosciences Public Health |
| Content Type | Text |
| Resource Type | Article |
| Subject | Developmental and Educational Psychology |
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