NDLI: Neurofibromatosis Clinical Trial Consortium.

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Neurofibromatosis Clinical Trial Consortium.

Content Provider	Semantic Scholar
Author	Packer, Roger J. Fisher, Michael J. Cutter, Gary R. Cole-Plourde, Karen Korf, Bruce R.
Copyright Year	2018
Abstract	Neurofibromatosis type 1 and type 2, affecting both children and adults, often results in devastating complications. The rapid unravelling of the genetic underpinnings of these unique disorders has led to the development of novel therapies, especially molecular-targeted therapies. To facilitate clinical trial development, the Neurofibromatosis Clinical Trial Consortium (NFCTC) was established in 2006 by the Department of Defense. Over the past decade, the Consortium has successfully completed studies for children and adults with neurofibromatosis type 1 and plexiform neurofibromas, neurocognitive challenges, low-grade gliomas, and malignant peripheral nerve sheath tumors. In addition, a study for children and adults with neurofibromatosis type 2 and acoustic schwannomas is near completion. The NFCTC has now been expanded to 19 sites in the United Stated and Australia. Mechanisms have been put in place to work closely with other consortia, foundations, and industry to expeditiously translate preclinical discoveries into clinical trials.
Starting Page	82
Ending Page	91
Page Count	10
File Format	PDF HTM / HTML
Alternate Webpage(s)	http://www.brainlife.org/fulltext/2017/Packer_RJ171215_JChildNeurol.pdf
PubMed reference number	29246097v1
Alternate Webpage(s)	https://doi.org/10.1177/0883073817739196
DOI	10.1177/0883073817739196
Journal	Journal of child neurology
Volume Number	33
Issue Number	1
Language	English
Access Restriction	Open
Subject Keyword	Acoustic Neuroma Foundations Glioma Malignant Peripheral Nerve Sheath Tumor NF1 gene Neoplasms Nerve Sheath Tumors Neurilemmoma Neurofibromatoses Neurofibromatosis 1 Neurofibromatosis 2 Peripheral Nerves Plexiform Neurofibroma Therapeutic procedure neurocognitive
Content Type	Text
Resource Type	Article

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