NDLI: What young people with spina bifida want to know about sex , and aren ’ t being

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What young people with spina bifida want to know about sex , and aren ’ t being

Content Provider	Semantic Scholar
Author	Told Akré, Christina
Copyright Year	2016
Abstract	Objective—To examine sexual knowledge, concerns, and needs of youth with spina bifida (SB) to inform the medical community on ways to better support their sexual health. Methods—As part of the Video Intervention/Prevention Assessment (VIA) – Transitions, a prospective cohort study, 309 hours of video data were collected from 14 participants (13–28 years) with SB. Participants were loaned a video camcorder for 8–12 weeks to shoot visual narratives about any aspects of their lives. VIA visual narratives were analyzed with Grounded Theory using NVivo. Results—Out of 14 participants, 11 (6 females) addressed issues surrounding romantic relationships and sexuality in their video clips. Analysis revealed shared concerns, questions, and challenges regarding sexuality gathered under 4 main themes: romantic relationships, sexuality, fertility and parenthood, and need for more talk on sexuality. Correspondence to: Christina AKRE, Christina.Akre@childrens.harvard.edu. Conflicts of interest: None declared. Permission for video excerpts has been provided by all participants by means of signed release forms. HHS Public Access Author manuscript Child Care Health Dev. Author manuscript; available in PMC 2016 November 01. Published in final edited form as: Child Care Health Dev. 2015 November ; 41(6): 963–969. doi:10.1111/cch.12282. A uhor M anscript
File Format	PDF HTM / HTML
Alternate Webpage(s)	https://www.ifglobal.org/download/1321
Language	English
Access Restriction	Open
Content Type	Text
Resource Type	Article

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