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Disease self-management needs of adolescents with cancer: perspectives of adolescents with cancer and their parents and healthcare providers
| Content Provider | Semantic Scholar |
|---|---|
| Author | Stinson, Jennifer N. Sung, L. Gupta, Alok White, M. E. Jibb, Lindsay A. Dettmer, Elizabeth L. Baker, Natalie |
| Copyright Year | 2012 |
| Abstract | PurposeThe ability for adolescents with cancer (AWC) to engage in disease self-management may result in improved cancer outcomes and quality-of-life ratings for this group. Despite this, a comprehensive self-management program for this group is yet to be developed. To ensure that self-management programming developed for AWC meets the needs of this group, discussion with key stakeholders (i.e., AWC, parents, and healthcare providers) is required.MethodsA descriptive qualitative design was used. Adolescents (n = 29) who varied in age (12 to 18 years) and type of cancer, their parents (n = 30) and their healthcare providers (n = 22) were recruited from one large tertiary-care oncology center. Audio-taped semi-structured individual and focus-group interviews were conducted with participants. Transcribed data were organized into categories that reflected emerging themes.ResultsFour major themes, which captured the self-management needs of AWC, emerged from the data. These themes were: (1) disease knowledge and cancer care skills, (2) knowledge and skills to support effective transition to adult healthcare, (3) delivery of AWC-accessible healthcare services, and (4) supports for the adolescent with cancer.ConclusionsIn order to provide comprehensive, relevant, and acceptable self-management programs to AWC, the voices of this population, their parents, and healthcare providers should be considered. Findings from this study will be used to develop and evaluate cancer self-management programming for AWC.Implications for cancer survivorsSelf-management represents an important avenue for exploration into improving cancer outcomes and quality of life for survivors of cancers during adolescence. |
| Starting Page | 278 |
| Ending Page | 286 |
| Page Count | 9 |
| File Format | PDF HTM / HTML |
| DOI | 10.1007/s11764-012-0222-1 |
| PubMed reference number | 22544451 |
| Journal | Medline |
| Volume Number | 6 |
| Alternate Webpage(s) | http://www.sickkids.ca/pdfs/Research/I-OUCH/Pain-Management/54925-Pain%20Management-2013-10_11.pdf |
| Alternate Webpage(s) | https://doi.org/10.1007/s11764-012-0222-1 |
| Journal | Journal of Cancer Survivorship |
| Language | English |
| Access Restriction | Open |
| Content Type | Text |
| Resource Type | Article |
