NDLI: Integrating Parents of Children with Special Health Care Needs into the Pediatric Medical Home

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Integrating Parents of Children with Special Health Care Needs into the Pediatric Medical Home

Content Provider	Semantic Scholar
Author	Creel, Liza M. Thomas, Janet A. Homan, Sharon Thompson, B. Brown, Marilyn Hassell, Kathryn L. Thomas, T. Fogg Kaye, Celia I.
Copyright Year	2017
Abstract	The medical home is an approach to providing comprehensive and coordinated care to children and families, including those impacted by special health care needs (CSHCN); it supports families with both medical and non-medical needs. Connecting families to non-medical community support services is challenging for many clinical providers. The Parent Partner Program was designed to train parents of CSHCN to work in their community pediatricians’ practices and help other families of CSHCN navigate clinical and social support services. The Parent Partner Program was implemented in eight pediatric primary care clinics across Montana and Wyoming in 2012. Three surveys were implemented to investigate the perceptions of participating providers, Parent Partners, and parents. The surveys indicated medium to high levels of satisfaction with the Parent Partner Program among all stakeholder groups. Despite limited perceived family awareness, the program has shown early successes in providing emotional support for families and improving practice efficiency. Areas for improvement included adding more in-depth training on topics and improving ongoing communication between care team members. Community-based pediatricians may consider implementing a patient navigation model such as the Parent Partner Program as an approach to providing more comprehensive care to families of CSHCN. *Corresponding author Liza M. Creel, Department of Health Management and Systems Sciences, University of Louisville School of Public Health and Information Sciences, 485 E. Gray Street, Louisville, Kentucky, USA, Tel: 01-502-852-3283; Email:
File Format	PDF HTM / HTML
Alternate Webpage(s)	https://www.jscimedcentral.com/FamilyMedicine/familymedicine-4-1114.pdf
Language	English
Access Restriction	Open
Content Type	Text
Resource Type	Article

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