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Predictive genetic testing : To know or not to know ?
| Content Provider | Semantic Scholar |
|---|---|
| Author | Raffelsbauer, Diana |
| Copyright Year | 2011 |
| Abstract | In my choice of launching the column with an article on predictive genetic testing, I was inspired by my work in the fi eld of Huntington's disease. It often led me to think of how I would behave and what decisions I would choose if I were at risk of this fatal disease. The topic also seemed appropriate because of the debate on preimplantation genetic diagnosis at the German Parliament (Bundestag) earlier this year and the 10th anniversary of the fi rst human genome project publication. I am particularly interested in ethics in clinical research, in how people's interests may be different from those of forprofi t companies and, most importantly, in whether people are aware of this. In the context of predictive genetic testing, it is legitimate to ask whether we should make use of all resources that current technology enables, although their potential to improve health-related quality of life is unquestionably welcome. At some point, we have to critically consider the advantages and disadvantages of the options and make the decision whether or not to use them. However, people (especially those without a medical background) are often left alone with answers that they might not be able to understand properly, or they are faced with an action for which they might not be psychologically prepared. So far, the impact of predictive genetic testing on mental health has been poorly investigated. |
| File Format | PDF HTM / HTML |
| Alternate Webpage(s) | http://www.pharmawrite.de/fileadmin/Bilder/07-2011/Raffelsbauer_Predictive_Genetic_Testing_TWS.pdf |
| Language | English |
| Access Restriction | Open |
| Content Type | Text |
| Resource Type | Article |
