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Development of a Hydroxyurea Decision Aid for Parents of Children With Sickle Cell Anemia
| Content Provider | Scilit |
|---|---|
| Author | Crosby, Lori E. Walton, Ashley Shook, Lisa M. Ware, Russell E. Treadwell, Marsha Saving, Kay L. Britto, Maria Peugh, James McTate, Emily Oyeku, Suzette Nwankwo, Cara Brinkman, William |
| Copyright Year | 2019 |
| Description | Journal: Journal of pediatric hematology/oncology National evidence-based guidelines recommend offering hydroxyurea to patients with sickle cell anemia 9 months of age and older using shared decision making, but offer no strategies to aid implementation. We developed a hydroxyurea multicomponent decision aid via a needs assessment, clinic observations, and iterative feedback to address parent decision needs and promote a discussion between clinicians and parents. A total of 75 parents and 28 clinicians participated across all phases. The decision aid was rated as useful. Hydroxyurea knowledge improved and decisional conflict decreased supporting the potential for use to facilitate shared decision making in pediatric sickle cell anemia. |
| Related Links | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7359001/pdf |
| Ending Page | 63 |
| Page Count | 8 |
| Starting Page | 56 |
| ISSN | 10774114 |
| e-ISSN | 15363678 |
| DOI | 10.1097/mph.0000000000001257 |
| Journal | Journal of pediatric hematology/oncology |
| Issue Number | 1 |
| Volume Number | 41 |
| Language | English |
| Publisher | Ovid Technologies (Wolters Kluwer Health) |
| Publisher Date | 2019-01-01 |
| Access Restriction | Open |
| Subject Keyword | Journal: Journal of pediatric hematology/oncology Primary Health Care Pediatric, Decision Making, Decision Aids, Treatment Preference, Hydroxyurea |
| Content Type | Text |
| Resource Type | Article |
| Subject | Hematology Pediatrics, Perinatology and Child Health Oncology |
