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Children with Apert syndrome: behavioural problems and family stress
| Content Provider | Scilit |
|---|---|
| Author | Sarimski, Klaus |
| Copyright Year | 2008 |
| Description | Journal: Developmental Medicine and Child Neurology Apert syndrome is characterized by severe craniosynostosis, midface hypoplasia, and symmetric syndactyly of the hands and sometimes of the feet. In this study, postal questionnaires were completed by parents of 41 children with Apert syndrome. Data from this preliminary survey revealed that the children functioned fairly well socially despite their disabilities and potential for psychological difficulties. Parents suffered from stress caused by problems over acceptance of the child'sappearance, the child'sbehavioural problems, and parental low selfâesteem. Ten mothers and eight fathers scored in the deviant range for parental stress, suggesting a need for psychological counselling. |
| Related Links | https://onlinelibrary.wiley.com/doi/pdf/10.1111/j.1469-8749.1998.tb15355.x |
| Ending Page | 49 |
| Page Count | 6 |
| Starting Page | 44 |
| ISSN | 00121622 |
| e-ISSN | 14698749 |
| DOI | 10.1111/j.1469-8749.1998.tb15355.x |
| Journal | Developmental Medicine and Child Neurology |
| Issue Number | 1 |
| Volume Number | 40 |
| Language | English |
| Publisher | Wiley-Blackwell |
| Publisher Date | 2008-11-12 |
| Access Restriction | Open |
| Subject Keyword | Journal: Developmental Medicine and Child Neurology Special Education Child'sappearance |
| Content Type | Text |
| Resource Type | Article |
| Subject | Neurology (clinical) Pediatrics, Perinatology and Child Health Developmental Neuroscience |
