Loading...
Please wait, while we are loading the content...
Similar Documents
Patient-reported outcomes in Huntington's disease: Quality of life in neurological disorders (Neuro-QoL) and Huntington's disease health-related quality of life (HDQLIFE) physical function measures
| Content Provider | Scilit |
|---|---|
| Author | Carlozzi, Noelle E. Ready, Rebecca E. Frank, Samuel Cella, David Hahn, Elizabeth A. Goodnight, Siera M. Schilling, Stephen G. Boileau, Nicholas R. Dayalu, Praveen |
| Copyright Year | 2017 |
| Description | Journal: Movement Disorders There is a need for patient-reported outcome measures that capture the impact that motor impairments have on health-related quality of life in individuals with Huntington's disease. The objectives of this study were to establish the reliability and validity of new physical functioning patient-reported outcome measures in Huntington's disease. A total of 510 individuals with Huntington's disease completed 2 Quality of Life in Neurological Disorders (Lower Extremity Function and Upper Extremity Function) and 3 Huntington's Disease Health-Related Quality of Life (Chorea, Speech Difficulties, and Swallowing Difficulties) measures. Clinician-rated and generic self-report measures were also administered. Reliabilities for the new patient reported physical functioning measures were excellent (all Cronbach's α > .92). Convergent, discriminant validity and known group validity was supported. The results provide psychometric support for new patient-reported physical functioning measures and the fact that these measures can be used as clinically meaningful endpoints in Huntington's disease research and clinical practice. © 2017 International Parkinson and Movement Disorder Society. |
| Related Links | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5605785/pdf |
| Ending Page | 1102 |
| Page Count | 7 |
| Starting Page | 1096 |
| e-ISSN | 15318257 |
| DOI | 10.1002/mds.27046 |
| Journal | Movement Disorders |
| Issue Number | 7 |
| Volume Number | 32 |
| Language | English |
| Publisher | Wiley-Blackwell |
| Publisher Date | 2017-05-27 |
| Access Restriction | Open |
| Subject Keyword | Journal: Movement Disorders Huntington's Disease Health-related Quality of Life Patient-reported Outcome (pro) Physical Functioning |
| Content Type | Text |
| Resource Type | Article |
