NDLI: Relationship Between Clinical Outcome Measures and Parent Proxy Reports of Health-Related Quality of Life in Ambulatory Children With Duchenne Muscular Dystrophy

Content Provider	Scilit
Author	McDonald, Craig McDonald, Dawn A. Bagley, Anita Thomas, Susan Sienko Buckon, Cathleen E. Henricson, Eric Nicorici, Alina Sussman, Michael D.
Copyright Year	2010
Related Links	http://europepmc.org/articles/pmc3695468?pdf=render https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3695468/pdf
Ending Page	1144
Page Count	15
Starting Page	1130
ISSN	08830738
e-ISSN	17088283
DOI	10.1177/0883073810371509
Journal	Journal of Child Neurology
Issue Number	9
Volume Number	25
Language	English
Publisher	SAGE Publications
Publisher Date	2010-09-01
Access Restriction	Open
Subject Keyword	Journal: Journal of Child Neurology Pediatrics and Child Health Duchenne Muscular Dystrophy Clinical Outcome Measures Health Related Quality of Life Clinical Trials
Content Type	Text
Resource Type	Article
Subject	Neurology (clinical) Pediatrics, Perinatology and Child Health

Central Library (ISO-9001:2015 Certified)
Indian Institute of Technology Kharagpur
Kharagpur, West Bengal, India | PIN - 721302

See location in the Map
03222 282435
Mail: support@ndl.gov.in

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

Relationship Between Clinical Outcome Measures and Parent Proxy Reports of Health-Related Quality of Life in Ambulatory Children With Duchenne Muscular Dystrophy