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Support Network Factors Associated With Naming a Health Care Decision-Maker and Talking About Advance Care Planning Among People Living With HIV
| Content Provider | Scilit |
|---|---|
| Author | Cruz-Oliver, Dulce M. Tseng, Tuo-Yen Mitchell, Mary M. Catanzarite, Zachary Budhathoki, Chakra Smith, Thomas J. Rushton, Cynda H. Knowlton, Amy R. |
| Copyright Year | 2019 |
| Description | Journal: Journal of Pain and Symptom Management Context Little attention has been given to social environmental factors associated with advance care planning (ACP) among African Americans or people living with advanced HIV (PLHIV). Objectives The present study aimed to identify support network factors that affect the likelihood of naming a decision-maker and of talking to family/friends and doctors about ACP among vulnerable PLHIV. Methods PLHIV were recruited from a large urban HIV clinic. A social support network inventory was used to calculate number of persons available for various types of support. Characteristics of network members were also collected. Multivariable logistic regression models were fit to examine associations between social network factors and ACP discussion, adjusting for age, sex, education, and total number of network members. Results The sample (N = 370) was mostly African American (95%), male (56%), and 48% had less than a high school education. Almost half the sample (48%) had talked to their family/friends or doctor about ACP, and 34% had named a medical decision-maker. Adjusted analysis revealed that talking about ACP with family/friends was associated with female sex and a larger closer support network who provided health information and physical assistance. Talking to doctors about ACP was associated with larger support networks who provided physical assistance but lower numbers from whom emotional support was received. Naming a decision-maker was associated with greater numbers of network members who provided emotional support, health information, and medication adherence reminders. Conclusion The findings revealed aspects of family/support network structures and caregiving function associated with ACP in a population with often vital yet vulnerable networks. |
| Related Links | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6915303/pdf http://www.jpsmjournal.com/article/S0885392419305056/pdf |
| Ending Page | 1047 |
| Page Count | 8 |
| Starting Page | 1040 |
| ISSN | 08853924 |
| e-ISSN | 18736513 |
| DOI | 10.1016/j.jpainsymman.2019.08.019 |
| Journal | Journal of Pain and Symptom Management |
| Issue Number | 6 |
| Volume Number | 58 |
| Language | English |
| Publisher | Elsevier BV |
| Publisher Date | 2019-08-22 |
| Access Restriction | Open |
| Subject Keyword | Journal: Journal of Pain and Symptom Management Advance Care Planning Naming Decision-maker Family Or Informal Caregiver African American Or Black |
| Content Type | Text |
| Resource Type | Article |
| Subject | Nursing Neurology (clinical) Anesthesiology and Pain Medicine |
