NDLI: Traumatic brain injury caregivers: A qualitative analysis of spouse and parent perspectives on quality of life

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Traumatic brain injury caregivers: A qualitative analysis of spouse and parent perspectives on quality of life

Content Provider	Scilit
Author	Kratz, Anna L. Sander, Angelle M. Brickell, Tracey A. Lange, Rael T. Carlozzi, Noelle E.
Copyright Year	2015
Description	Journal: Neuropsychological Rehabilitation The objective of this qualitative study was to examine how family caregivers of individuals with traumatic brain injury (TBI) describe their quality of life in the context of their caregiving role. Fifty-two caregivers of adults with moderate or severe TBI (n = 31 parents, n = 21 partners/spouses; 77% female; mean age = 57.96 years, range = 34–78 years) were recruited from three data collection sites to participate in focus groups. Thematic content analysis was used to identify two main meta-themes: Caregiver Role Demands and Changes in Person with TBI. Prominent sub-themes indicated that caregivers are (1) overburdened with responsibilities, (2) lack personal time and time for self-care, (3) feel that their life is interrupted or lost, (4) grieve the loss of the person with TBI, and (5) endorse anger, guilt, anxiety, and sadness. Caregivers identified a number of service needs. A number of sub-themes were perceived differently by partner versus parent caregivers. The day-to-day responsibilities of being a caregiver as well as the changes in the person with the TBI present a variety of challenges and sources of distress for caregivers. Although services that address instrumental as well as emotional needs of caregivers may benefit caregivers in general, the service needs of parent and partner caregivers may differ.
Related Links	http://europepmc.org/articles/pmc4673040?pdf=render https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4673040/pdf
Ending Page	37
Page Count	22
Starting Page	16
ISSN	09602011
e-ISSN	14640694
DOI	10.1080/09602011.2015.1051056
Journal	Neuropsychological Rehabilitation
Issue Number	1
Volume Number	27
Language	English
Publisher	Informa UK Limited
Publisher Date	2015-06-08
Access Restriction	Open
Subject Keyword	Journal: Neuropsychological Rehabilitation Special Education Traumatic Brain Injury Quality of Life
Content Type	Text
Subject	Arts and Humanities Rehabilitation Neuropsychology and Physiological Psychology Applied Psychology

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