NDLI: Meaningful outcomes for enhancing quality of life for individuals with autism spectrum disorder

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Meaningful outcomes for enhancing quality of life for individuals with autism spectrum disorder

Content Provider	Scilit
Author	Pfeiffer, Beth Piller, Aimee Giazzoni-Fialko, Tina Chainani, Anjali
Copyright Year	2016
Description	Background Autism spectrum disorder (ASD) is a developmental disorder that continues across the lifespan, but little research exists to examine interventions from both child and adult perspectives. The researchers in this study considered the perspectives of individuals with ASD and caregivers of children with ASD to determine interventions and outcomes perceived as meaningful for both children and adults. Methods Grounded theory methodology was used to guide data collection and analysis. Participants included 5 parents of children with ASD and 5 adults with ASD. Data were collected through interviews. Results A central theme of Intervention priorities for quality of life was supported. Individual themes identified from parents focused on future planning, community involvement, and scheduling and planning. Individual themes identified from the adults focused on misconceptions. Both groups shared the themes of acceptance; financial challenges; support, resources, and advocacy; skills learned; and socially and functionally based interventions. Conclusion Results support interventions and resources for individuals with ASD focused on meaningful outcomes, including acceptance, community involvement, social success, independent living, and vocational/financial stability.
Related Links	https://www.tandfonline.com/doi/pdf/10.3109/13668250.2016.1197893
ISSN	13668250
e-ISSN	14699532
DOI	10.3109/13668250.2016.1197893
Journal	Journal of Intellectual & Developmental Disability
Issue Number	1
Volume Number	42
Language	English
Publisher	Informa UK Limited
Publisher Date	2016-06-23
Access Restriction	Open
Subject Keyword	Journal: Journal of Intellectual & Developmental Disability Special Education Autism Spectrum Disorder Meaningful Outcomes Quality of Life
Content Type	Text
Resource Type	Article
Subject	Arts and Humanities Education Medicine Psychology

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